Our research team works collaboratively to identify the causes of very early onset IBD (VEO-IBD) with the goal to personalize care to each of our patients. This team includes gastroenterologists, immunologists, basic science researchers, geneticists, epidemiologists, bioinformaticians, microbiologists, and research coordinators. All participation in research endeavors is voluntary and are not a prerequisite to be evaluated in the VEO-IBD clinic.
Our research has translated to individualized therapies for many of our patients, as well as the development of the CHOP VEO-IBD genetic sequencing panel based on our findings. This panel is a clinically available comprehensive test of genes involved in VEO-IBD and has met the highest regulatory standards that apply to all clinical laboratory testing in the United States.
- Vast experience incorporating nutritional management and therapies. Nutrition is a key component of our treatment recommendations and the overall nutritional status of our patients is critical to maintaining health and disease remission.
- Quick scheduling of appointments. When VEO-IBD is suspected or diagnosed, which can be difficult in a young child and a trying time for their families, our expert coordinators will gather your initial information and schedule all patients as expeditiously as possible in our multidisciplinary clinic.
- Physician referrals and second opinions. Our center encourages physician referrals and second opinions, as well as new patient visits. If you feel a patient needs to be seen more urgently, let us know and we will work with you.
- State of the art pediatric endoscopy and infusion suite. Our endoscopy team performs more than 4,500 procedures annually. IBD patients are served by the same staff and are in the same space, whether coming in for endoscopy or infliximab infusion.
- Unparalleled patient access to research trials.
- In-person support for the whole family. Our Center offers emotional and social support to meet the unique needs of all family members experiencing a VEO-IBD diagnosis. Each year we have an IBD Education Day, where hundreds of family members join us for ongoing education, panels, and support. We also offer quarterly support group geared at young children, siblings, and their parents facing this diagnosis.