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Patient Stories

Our patients' stories

Hope outside in the snow
Patient story

Hemifacial Microsomia: Hope’s Story

Born without ears, Hope found expert care and support at CHOP. Today, she is playing, singing, dancing and embracing a world opened through hearing.

My'Aire
Patient story

Goldenhar Syndrome: My’Aire’s Story

Born with a rare condition that affects the development of the ear, face and organs, My’Aire has undergone multiple procedures. His resilience is inspiring.

Ari
Patient story

Beckwith-Wiedemann Spectrum: Ari's Story

Ari was born with a rare genetic disorder. His family travels from Ohio to Philadelphia for the expert, comprehensive care found only at CHOP’s specialized clinic.

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