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Patient Stories

Our patients' stories

Patient story

Symptomatic bipartite patella: Amy’s story

After successful surgery at CHOP to remove a broken bit of her kneecap, Amy returned to the sport she loved: figure skating, but this time with a new perspective.

Patient story

Isolated Congenital Asplenia: Cole’s Story

Born without a spleen, Cole faced life-threatening infections before CHOP doctors uncovered the cause. Discover how innovative care helped this 8-year-old thrive.

Patient story

Tracheomalacia: Bradley’s Story

When Bradley was born, his “seal-like” bark and struggle to breathe were dismissed by local doctors. His family brought him to CHOP for answers and treatment.

Patient story

VACTERL Association: Zuri’s Story

From in-utero detection of spina bifida to treating heart and airway issues linked to VACTERL, CHOP’s multidisciplinary specialists delivered life-saving care to Zuri.

Patient story

Hypothalamic Glioma: Silas’s Story

After an inoperable brain tumor diagnosis, Silas found hope at CHOP, where innovative insight and precise, collaborative care changed the course of his young life.

Harper eating a cupcake
Patient story

Noonan Syndrome: Harper’s Story

Harper has overcome a lot in her young life but her family refuses to let her diagnosis of Noonan syndrome define what she can accomplish.

Patient story

Sacral Neuromodulation: Jasmine’s Story

Through CHOP’s NEBULA program, a teen with Fowler’s syndrome and constipation gets a sacral nerve stimulator implant and gains independence and confidence.

Patient story

Polio: Marsha's Story

“Do the Best I Can with What I’ve got”

Growing up in Detroit, Michigan, Marsha lived a normal life, surrounded by loving relatives, including an older sister, whom Marsha just adored. “She was almost like a mother to me because she was so much older,” says Marsha.

Cora Wilson
Patient story

Papillary Thyroid Cancer: Cora’s Story

A groundbreaking clinical trial at CHOP used precision medicine to put 12-year-old Cora’s rare thyroid cancer in remission – and got her back to gymnastics.

Kyrie and his mom, Shantyl Woodberry, smile together after his successful larotrectinib treatment at Children’s Hospital of Philadelphia
Patient story

CHOP Research Hero

At just 6 years old, Kyrie was diagnosed with a rare cancer and his family faced a decision. Pursue typical treatment, or participate in a clinical trial. They chose the trial and Kyrie is thriving while helping advance care for other children like him.

Patient story

Leading with Love: The Mom Behind CHOP’s Powerhouse Fundraiser

When her son Baron was diagnosed with mitochondrial disease, Kim Burd turned her family’s journey at CHOP into the inspiration behind the Powerhouse Fundraiser—a movement uniting families, doctors, and donors to fuel lifesaving research.

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