Chronic Lung Disease: Leila’s Story
Born at 26 weeks, Leila’s lungs failed to develop. Specialty care during her CHOP stay and after helped her breathe on her own and her family cope.
Patient Stories
1 - 10 of 801
VACTERL Association: Olivia’s Story
Diagnosed with VACTERL Association, Olivia found improved care and treatment at CHOP’s Suzi and Scott Lustgarten Center for GI Motility.
Holden and Elliott’s Story: MECP2 Duplication Syndrome
Holden and his brother, Elliott, share more than a love for cars and trucks. They also both have the same rare genetic neurologic disorder, known as MECP2 duplication syndrome.
Sepsis Treatment and Follow-up Care: Sophia’s Story
What started as a bout of the flu for Sophia led to sepsis and significant medical complications that risked her life. She was transferred to CHOP where a multidisciplinary team of experts coordinated her complex care.
Interstitial Lung Disease: Jacob’s Story
CHOP’s diagnosis and treatment of a rare lung disease solved a medical mystery for Jacob. Shared care with his Virginia pulmonologist is keeping him healthy.
Acute Lymphoblastic Leukemia and CAR T-Cell Therapy: Asa’s Story
Diagnosed with leukemia at 3 months old, Asa received a revolutionary therapy that was pioneered at CHOP.
Diffuse Hyperinsulinism: Omar’s Story
After three months of searching for answers, Omar’s family found a diagnosis — and hope, at Children’s Hospital of Philadelphia.
From Portland to Philly: Bubba’s Journey with Chylopericardium
When an active 11-year-old suffered from a rare lymphatic disorder, his military family traveled to CHOP for the expert care he needed.
Neuroblastoma: Ellie’s Story
As a newborn, Ellie spent time in CHOP’s NICU. When she developed symptoms that led to a cancer diagnosis, the family knew that CHOP was the right place for care.
X-linked Lymphoproliferative Disease 1: Rafi’s Story
Genetic sequencing revealed that Rafi had an extremely rare, often fatal disease — and the discovery was amazingly made before he had serious symptoms.