Patient Stories

21 - 30 of 701

CDKL5 Deficiency Disorder: Avery's Story


Avery, 6, has been treated at Children’s Hospital of Philadelphia (CHOP) for seizures since she was a baby. She is one of the first patients to benefit from CHOP’s new multidisciplinary CDKL5 clinic.

Heart Transplant: Tenlee's Story

family portrait on bed

Tenlee was 3 days old when her family learned reconstructive surgery wouldn't be enough to save her life — she needed a new heart.

Patent Ductus Arteriosus: Zylah’s Story

premature baby

Before Zylah was even born, she received a miraculous birthday gift. It wasn’t a frilly dress or a pretty doll, but a heart procedure developed for extremely premature babies, just like her.

Morgan’s Story: Bilateral Hip Surgery

girl wearing hat in park

When Morgan was 11, longstanding hip issues began to severely limit her mobility and ability to play her favorite sport, soccer. Here, she describes the experience in her own words.

Celiac Disease: Weston’s Story

little boy GI patient in stroller eating ice cream bar

Learn how the Center for Celiac Disease at Children’s Hospital of Philadelphia helped this family change their diets and get their son well.

Beta Thalassemia Major: Mia’s Story

girl hospital patient and brother

From the time she was just a few months old, Mia needed blood transfusions due to her rare blood disease. A bone marrow transplant changed everything.