Severe Spine Curves and Related Complications: Vaia’s Story
When their foster daughter faced insurmountable odds, a Delaware couple turned to CHOP for help with complications from spinal muscular atrophy.
Patient Stories
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Fighting Through the Pain
Debilitating pain without a known injury can strike some of the most driven and high-achieving youth. A CHOP program offers support, treatment and relief.
Lyra’s Story: Celebrating the 5,000th Baby Born in the Garbose Family Special Delivery Unit
After learning their unborn daughter’s life was at risk from a tumor growing on her tailbone, Lyra’s parents found hope in the SCT experts at CHOP.
Treatment for Congenital Hypothyroidism Before Birth: Jane’s Story
When a 20-week-old fetus was diagnosed with a large goiter, CHOP experts offered a novel solution – regular infusions of thyroid hormone into the umbilical cord.
AJ’s Story: Fetal Surgery for Congenital Diaphragmatic Hernia
Fetal surgery for severe CDH gave AJ’s lungs a chance to grow before birth, improving his chances of a better outcome. Today, the 6-year-old is thriving.
Asher’s Story: Fetoscopic Endoluminal Tracheal Occlusion for Congenital Diaphragmatic Hernia
Asher came to CHOP for a fetal surgery procedure called FETO to treat his severe CDH before he was born, giving him the best chance to survive and thrive.
Surgery for a Brain Tumor: Julia's Story
While Julia’s diagnosis of a brain tumor was a shock to her family, the location and type of tumor meant surgery at CHOP was the only treatment she needed.
Managing Big Emotions: Effie’s Story
Counseling on its own wasn’t enough to help Effie regulate her behavior. After working with CHOP, she started on medication and now can control her emotions.
Siblings with Autism: Erik and Luke’s Story
A family finds hope at CHOP and now advocates for continued autism acceptance, research and support.
Twin-twin Transfusion Syndrome: Josephine and Athena’s Story
When their twins were diagnosed prenatally with twin-to-twin transfusion syndrome, a New Jersey couple found hope at Children’s Hospital of Philadelphia.