Patient Stories

When Daulton was 3 years old, breathing trouble led doctors to discover a malignant mass occupying 60 percent of his chest cavity. The diagnosis was lymphoma.

It all started when he fell off a trampoline at a friend’s birthday party. Concerns about a possible concussion soon gave way to more shocking news: Liam had a brain tumor.

Grayson has an astrocytoma on his brain stem. It is the type of tumor that can become almost a chronic disease — it may never disappear, but the goal of treatment is to keep it stabilized.

Just shy of his 16th birthday, Adam Bengis was diagnosed with T-cell acute lymphoblastic leukemia. For the next 29 days, he lived at CHOP while he received chemotherapy.

Kelley Schmidt and Kristin Camiolo, who both have daughters followed by the Neurofibromatosis Program at The Children’s Hospital of Philadelphia, share their stories in hopes of helping other families who are facing an NF1 diagnosis.

Diagnosed with a very rare lymphatic disorder, Marta traveled from Norway to find treatment at the Jill and Mark Fishman Center for Lymphatic Disorders at Children's Hospital.

When it was time for Lilly Moore to have her third surgery for HLHS, her parents made the decision to travel 2,300 miles from home to the Cardiac Center at CHOP.

After being prenatally diagnosed with congenital diaphragmatic hernia (CDH), Parker, now 9, was treated with extracorporeal membrane oxygenation (ECMO) on her first day of life.

At just one day old, Emily underwent surgery to remove a sacrococcygeal teratoma (SCT), a large tumor that had grown to be a third of her size by the time she was born.