Adolescent & Young Adult (AYA) Oncology Program Resources

Apps

Easy way for you to manage your medications and doctor’s instructions.

CaringBridge offers a safe, secure place for patients and caregivers to provide health updates, and for family and friends to respond with messages of emotional support and prayers.

Award-winning, mobile app-based social community founded by cancer survivors and caregivers who wanted to create a more human approach to helping people live on their own terms.

Online patient health portal for patients and families of Children's Hospital of Philadelphia (CHOP). Schedule appointments and send messages to your providers.

The Mental Health App Guide Designed with you in mind. Looking for a mental health app? There are lots to choose from, and we're here to help!


Podcasts

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Listen in to podcast where adolescents and young adults (AYA) from the Cancer Center at The Children's Hospital of Philadelphia discuss their experiences with cancer diagnosis and treatment.


Reproductive Health

Fertile Action is a cancer charity working to ensure fertile women touched by the disease can become mothers.

Some cancer patients and survivors face the real risk of infertility due to a cancer diagnosis and/or its treatment. LIVESTRONG Fertility helps you understand your fertility risks and options, and get access to fertility preservation discounts.

The Oncofertility Consortium is an international, interdisciplinary initiative designed to explore the reproductive future of cancer survivors.


For Patients

If you are an adolescent or young adult (AYA) with cancer, you probably have many questions. We understand that not everyone wants to ask their questions out loud, so we’ve compiled a list of those that are often asked.

The goal of the program is to connect adolescents or young adults recently diagnosed with cancer with a young adult who has completed cancer treatment. Learn more about our Oncology Peer-to-Peer Mentoring Program and how you can participate.

The AYA Patient Steering Committee is made up of AYA patients and survivors, as well as psychosocial and child life specialists from CHOP. The group addresses the unique concerns of AYAs and provides a community for children in this age group who have been treated for cancer.


Websites

2bme is home to a collection of short articles for teens with cancer. Topics include handling non-medical issues like diet, body image and relationships.

CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial assistance to people facing a cancer diagnosis.

CureSearch for Children's Cancer contains a wealth of information on diagnosis and treatment of childhood cancer and the late effects of cancer therapy. CureSearch provides educational and coping resources to families affected by childhood cancer.

Is a one-on-one cancer support service that connects a person fighting cancer with a survivor who has beaten the same type of cancer.

Adolescents and young adults have very specific concerns and needs when faced with a cancer diagnosis. This is the time when you want to meet others, focus on school, and start a family. A cancer diagnosis can present many challenges, and we’re here to help you.

It's a nonprofit organization dedicated to providing personalized songs for children and teens currently facing tough medical, physical or emotional challenges, free of charge.

Young Adult Cancer Connection offers young adults (18-39) with cancer experience, whether in remission or in treatment, and their caregivers a forum to work through the issues unique to this age group.


Coping

Cancer and Careers empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events.

Their mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Connect with friends and families through your private community website, join a discussion board, find resources on living with cancers, and much more.

NCCF is committed to providing need-based financial support to young adult survivors who are pursuing higher education throughout their treatment and beyond. Furthermore, the Foundation promotes awareness and prevention of cancer within the young adult community.


Community Organizations

13thirty is an internationally known and respected leader in the field of adolescent and young adult (AYA) cancer because of our strong passion, clear vision, and steadfast commitment to a singular focus — teens and young adults with cancer.

The American Society of Clinical Oncology (ASCO) is the voice of the world’s cancer physicians. ASCO’s patient information website -- Cancer.Net - brings the expertise and resources of ASCO to people living with cancer and those who care for and care about them.

Adolescents and young adults have very specific concerns and needs when faced with a cancer diagnosis. This is the time when you want to meet others, focus on school and start a family. A cancer diagnosis can present many challenges, and we’re here to help you.

Teen Cancer America’s mission is to improve the experience, outcomes and survival of teens and young adults with cancer by providing facilities and programs designed especially for them in hospitals throughout the USA.

Ullman Foundation’s mission is to change lives by creating a community of support for young adults, and their loved ones, impacted by cancer.


Books

Through her own experiences as a two-time cancer survivor, and previous teen cancer patient who faced a forty percent chance of survival, Clarissa Schilstra has learned a great deal about all of these challenges and how to cope with them.

A warm and relatable teen guide to reducing anxiety, depression and panic while developing resilience and confidence with 40 tips and tricks that guide, support, and inspire teens to keep calm and stay mindful.