Adolescent & Young Adult (AYA) Oncology Program Resources

Apps

Easy way for you to manage your medications and doctor’s instructions.

CaringBridge offers a safe, secure place for patients and caregivers to provide health updates, and for family and friends to respond with messages of emotional support and prayers.

Award-winning, mobile app-based social community founded by cancer survivors and caregivers who wanted to create a more human approach to helping people live on their own terms.

Discover support designed for you! If you are living with cancer, feeling supported by your family and friends may be more important than ever.  LivingWith is designed to help you connect with loved ones, ask for the support you need, remember important information from doctor’s visits and stay organized all in one place.

Keep track of your healthy routine with MangoHealth! In this app you create your personal schedule of healthy habits, including taking your medication on time.  You will receive customized reminders and earn points for gift cards as you maintain your healthy routine.

Keeping track of your medications can be difficult!  Medisafe’s medication reminder app is a fast, secure and accurate way to keep track of all of your meds, get personalized reminders and vital drug interaction warnings.

Mother and daughter talking

With our patient portal you can schedule appointments, access records, see test results, ask your care provider questions, and more — right from your smartphone.

The Mental Health App Guide Designed with you in mind. Looking for a mental health app? There are lots to choose from, and we're here to help!

Support network for patients and caregivers. Participate in stigma-free discussions, find like-minded people, get support, recommendations, enjoy exclusive member benefits and find yourself again.


Books

Through her own experiences as a two-time cancer survivor, and previous teen cancer patient who faced a forty percent chance of survival, Clarissa Schilstra has learned a great deal about all of these challenges and how to cope with them.

A warm and relatable teen guide to reducing anxiety, depression and panic while developing resilience and confidence with 40 tips and tricks that guide, support, and inspire teens to keep calm and stay mindful.


College

College Consultants Care provides FREE college application assistance from experienced Independent Educational Consultants to students diagnosed with cancer (and are on treatment) or have a parent diagnosed with cancer.

NCCF is committed to providing need-based financial support to young adult survivors who are pursuing higher education throughout their treatment and beyond. Furthermore, the Foundation promotes awareness and prevention of cancer within the young adult community.


Community Organizations

13thirty is an internationally known and respected leader in the field of adolescent and young adult (AYA) cancer because of our strong passion, clear vision, and steadfast commitment to a singular focus — teens and young adults with cancer.

The American Society of Clinical Oncology (ASCO) is the voice of the world’s cancer physicians. ASCO’s patient information website -- Cancer.Net - brings the expertise and resources of ASCO to people living with cancer and those who care for and care about them.

Adolescents and young adults have very specific concerns and needs when faced with a cancer diagnosis. This is the time when you want to meet others, focus on school and start a family. A cancer diagnosis can present many challenges, and we’re here to help you.

Teen Cancer America’s mission is to improve the experience, outcomes and survival of teens and young adults with cancer by providing facilities and programs designed especially for them in hospitals throughout the USA.

Ullman Foundation’s mission is to change lives by creating a community of support for young adults, and their loved ones, impacted by cancer.


Coping

Cancer and Careers empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events.

Their mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Connect with friends and families through your private community website, join a discussion board, find resources on living with cancers, and much more.


Educational and Social Resources for Patients

If you are an adolescent or young adult (AYA) with cancer, you probably have many questions. We understand that not everyone wants to ask their questions out loud, so we’ve compiled a list of those that are often asked.

The AYA Patient Steering Committee is made up of AYA patients and survivors, as well as psychosocial and child life specialists from CHOP. The group addresses the unique concerns of AYAs and provides a community for children in this age group who have been treated for cancer.

THE ELEPHANT IN THE ROOM IS CANCER. TEA IS THE RELIEF CONVERSATION PROVIDES. Elephants and Tea is a media company with the mission to help adolescent and young adult (AYA) patients, survivors and caregivers know they are not alone in their fight with cancer. We are the only magazine written for and by the AYA cancer community telling their story in their own words.

Triage Cancer offers a variety of events and resources to educate individuals diagnosed with cancer, their caregivers, and their community of support, about the many physical, psychological, practical, legal, and financial issues that may come with a cancer diagnosis.


Podcasts

Zamiyha smiling

Listen in to podcast where adolescents and young adults (AYA) from the Cancer Center at The Children's Hospital of Philadelphia discuss their experiences with cancer diagnosis and treatment.

Two young adults, Vinnie Cent and Sierra Missed, talk about LIFE, their experiences with cancer, and ways to elevate the young adult cancer community through conversation. Bon Appetit!


Reproductive Health

Fertile Action is a cancer charity working to ensure fertile women touched by the disease can become mothers.

Some cancer patients and survivors face the real risk of infertility due to a cancer diagnosis and/or its treatment. LIVESTRONG Fertility helps you understand your fertility risks and options, and get access to fertility preservation discounts.

The Oncofertility Consortium is an international, interdisciplinary initiative designed to explore the reproductive future of cancer survivors.


Websites

2bme is home to a collection of short articles for teens with cancer. Topics include handling non-medical issues like diet, body image and relationships.

CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial assistance to people facing a cancer diagnosis.

CureSearch for Children's Cancer contains a wealth of information on diagnosis and treatment of childhood cancer and the late effects of cancer therapy. CureSearch provides educational and coping resources to families affected by childhood cancer.

Is a one-on-one cancer support service that connects a person fighting cancer with a survivor who has beaten the same type of cancer.

Lacuna Loft is a nonprofit organization providing online support programs to young adult cancer patients, survivors, and caregivers.

Adolescents and young adults have very specific concerns and needs when faced with a cancer diagnosis. This is the time when you want to meet others, focus on school, and start a family. A cancer diagnosis can present many challenges, and we’re here to help you.

It's a nonprofit organization dedicated to providing personalized songs for children and teens currently facing tough medical, physical or emotional challenges, free of charge.

Young Adult Cancer Connection offers young adults (18-39) with cancer experience, whether in remission or in treatment, and their caregivers a forum to work through the issues unique to this age group.