Neurofibromatosis Family Association (NFFA)

The Neurofibromatosis (NF) Family Association is a parent volunteer group that exists to support families and individuals at The Children’s Hospital of Philadelphia who are affected by  neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis.

The goal of the Association is to help enhance and expand CHOP’s NF clinical services and research endeavors, and build an NF community through robust educational and fundraising activities.

For more information, email the NF Family Association. For support or to be connected with families that are experiencing similar challenges email You can also visit the NFFA on Facebook!