Caring for your child

Health resource

Face to Face Portrait Project

The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.

Health resource

How to choose a plastic and reconstructive surgery program for craniofacial conditions: A guide for parents

Important questions to ask potential providers when looking for a program to treat your child’s craniofacial difference.

Health resource

The Plastic Bronchitis Foundation

The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.

Health resource

Lymphangiomatosis and Gorham's Disease Alliance

The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.

Health resource

March of Dimes

March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.

Professional Resource

Neurometabolic Optical Monitor: A Game-changer for CPR and Critical Care

Researchers at Children's Hospital of Philadelphia are working to create a non-invasive device to measure brain oxygenation during CPR and critical care, with the goal to reduce brain injury and death.

Health resource