International Rett Syndrome Foundation
The International Rett Syndrome Foundation (IRSF) is laser-focused on creating a world without Rett syndrome. For nearly 40 years, we have fueled life-changing advancements in research toward a cure.
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Rett Syndrome Primary Care Guidelines
The Rett Syndrome Primary Care Guidelines provide suggested visit schedules by clinical area of assessment, specific concerns to look for and timelines for follow up appointments. Download today to ensure the best care for your child.
Neurometabolic Optical Monitor: A Game-changer for CPR and Critical Care
Researchers at Children's Hospital of Philadelphia are working to create a non-invasive device to measure brain oxygenation during CPR and critical care, with the goal to reduce brain injury and death.
NINDS Rett Syndrome Information
The mission is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease for all people.
Dialysis Modalities Options for Patients and Families
This educational resource will help patients and families understand the different types of dialysis modalities that are available at CHOP. If your child is in need of dialysis, a member of the team will review the information with you so that you can make the best choice for your child and family.