Patient Resources and Contacts
Learn how to connect with members of the team.
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Learn how to connect with members of the team.
The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
Watch this video of lymphatic flow and drainage from the Jill and Mark Fishman Center for Lymphatic Disorders at CHOP.
View this presentation from Christopher Smith, MD, PhD, with the Lymphatic Education & Research Network.
This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
Introducción a la Genética
This educational module from Children's Hospital of Philadelphia (CHOP) is designed to help you understand the basics of genomics and how changes in our genetic makeup can lead to various medical conditions.
The Comprehensive Bone Marrow Failure Center (CBMFC) at the Children’s Hospital of Philadelphia (CHOP) is committed to providing comprehensive care for children, adolescents, and young adults with bone marrow failure disorders. Our goal is for our patients to become confident and comfortable in their own health care, so that they and their families are prepared for a smooth and successful transition to adult life when the time comes.
In this episode of Pediatric & Congenital Heart Talks, Yoav Dori, MD, PhD, covers innovative diagnostics and therapeutic strategies for lymphatic disorders.