Patient Resources and Contacts
Learn how to connect with members of the team.
Caring for your child
Search patient & family resources
Filter By
Type
Aggregated field
Topic
Age group
Audience
Showing 1 - 10 of 15 results
The Plastic Bronchitis Foundation
The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
Lymphangiomatosis and Gorham's Disease Alliance
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
Proton Therapy Case Study
P.J. presented with a tumor measuring 3.7 x 3.5 x 7.7 cm in her right mandible. A biopsy of the tumor classified it as Ewing sarcoma. Radiation oncologist and medical director of the Roberts Proton Therapy Center Zelig Tochner, M.D., evaluated P.J.’s case and was quick to recommend proton therapy.
Normal Lymphatic Anatomy and Flow Video
Watch this video of lymphatic flow and drainage from the Jill and Mark Fishman Center for Lymphatic Disorders at CHOP.
New Diagnostic Procedures and Interventions for Patients with Systemic Lymphatic Disease
View this presentation from Christopher Smith, MD, PhD, with the Lymphatic Education & Research Network.
Management of Infants with Lymphatic Disorders Clinical Pathway — Inpatient
This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
Introducción a la Genética
Introducción a la Genética
Roberts Proton Therapy Center
This advanced proton therapy center was the first in the mid-Atlantic region and was designed specifically to accommodate the needs of children with cancer and their families.
Understanding Genomics and Genetic Testing
This educational module from Children's Hospital of Philadelphia (CHOP) is designed to help you understand the basics of genomics and how changes in our genetic makeup can lead to various medical conditions.