AACAP – Understanding Risk and Protective Factors for Suicide
Provides a brief overview of the importance of risk and protective factors as they relate to suicide and offers guidance about how communities can best use them to decrease suicide risk.
Caring for your child
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Patient Resources and Contacts
Learn how to connect with members of the team.
Introducción a la Genética
Introducción a la Genética
22q Support Groups in the United States
Find a list of support groups for chromosome 22q11.2 deletion in the United States.
22q International Support Groups
Find a list of International support groups for chromosome 22q11.2 deletion.
American College of Allergy, Asthma & Immunology
The American College of Allergy, Asthma & Immunology provides information and resources about allergies and asthma for patients and families.
International 22q11.2 Foundation Inc.
The Foundation provides medical, educational, psychosocial and local support resources for people with the 22q11.2 deletion syndrome and their families.
Understanding Genomics and Genetic Testing
This educational module from Children's Hospital of Philadelphia (CHOP) is designed to help you understand the basics of genomics and how changes in our genetic makeup can lead to various medical conditions.
Transition to Adulthood
The Comprehensive Bone Marrow Failure Center (CBMFC) at the Children’s Hospital of Philadelphia (CHOP) is committed to providing comprehensive care for children, adolescents, and young adults with bone marrow failure disorders. Our goal is for our patients to become confident and comfortable in their own health care, so that they and their families are prepared for a smooth and successful transition to adult life when the time comes.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.