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Caring for your child

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Showing 1 - 10 of 21 results

Health resource

Resource Connects

Resource Connects is a free website you can use to find community services and programs to support you, your child and family.

Health resource

RYR1 Foundation

Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.

Health resource

Cure Spinal Muscular Atrophy

Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease.

Health resource

Exercise Apps

View a list of exercise apps for physical activity that children can use at home.

Health resource

The Plastic Bronchitis Foundation

The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.

Health resource

Lymphangiomatosis and Gorham's Disease Alliance

The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.

Health resource

The Food Trust

The Food Trust works to ensure that everyone has access to affordable, nutritious food and information to make healthy decisions.

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