RYR1 Foundation
Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.
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Showing 1 - 8 of 8 results
Cure Spinal Muscular Atrophy
Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease.
United Cerebral Palsy
Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
Neurometabolic Optical Monitor: A Game-changer for CPR and Critical Care
Researchers at Children's Hospital of Philadelphia are working to create a non-invasive device to measure brain oxygenation during CPR and critical care, with the goal to reduce brain injury and death.
Crisis Resources
View a variety of help hotlines, as well as websites available for families in need.
Parent Project Muscular Dystrophy
PPMD provides information about Duchenne muscular dystrophy, the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births.
Spinal Muscular Atrophy Foundation
The mission of the SMA Foundation is to accelerate the development of a treatment for spinal muscular atrophy, the number one genetic killer of infants and toddlers.
Myasthenia Gravis Foundation of America
Find information about myasthenia gravis (MG), including living with MG, community support, research and how you can help.