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Leukodystrophy Center Welcome Guide

We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.

Health resource

Rules for a Healthy Voice

Follow these rules to promote use of a healthy speaking voice, and improve or prevent a voice disorder.

Health resource

Leukodystrophy Symposium Webinar Videos

These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.

Health resource

Academy of Nutrition and Dietetics

Is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy.

Health resource

Endoscopy Video

An endoscopy is a procedure used to detect ulcers, acid reflux, food allergy, infection and Celiac disease. It can be used to determine the cause of abdominal pain, nausea, vomiting, diarrhea and other gastrointestinal issues.

Health resource

Polyp Removal Video

Polyp removal, as demonstrated in this video clip, is one of the interventions performed at the Kohl's GI Nutrition and Diagnostic Center at The Children’s Hospital of Philadelphia.

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