Guide for Parents
Our goal at the Congenital Hyperinsulinism Center is to help you take your child home as soon as possible, either cured of hyperinsulinism or on a safe and manageable treatment plan.
Caring for your child
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The Plastic Bronchitis Foundation
The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
Lymphangiomatosis and Gorham's Disease Alliance
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
Learning More About Children with HI and Kabuki Syndrome
A study from CHOP’s HI Center provides insights into how to best care for children with Kabuki syndrome and hyperinsulinism.
Normal Lymphatic Anatomy and Flow Video
Watch this video of lymphatic flow and drainage from the Jill and Mark Fishman Center for Lymphatic Disorders at CHOP.
Diagnóstico de Hiperinsulinismo, Tratamiento, Resultados e Investigación
Vea el video para conocer más sobre la atención de expertos que brinda el Centro de Hiperinsulinismo Congénito de The Children's Hospital of Philadelphia.
New Diagnostic Procedures and Interventions for Patients with Systemic Lymphatic Disease
View this presentation from Christopher Smith, MD, PhD, with the Lymphatic Education & Research Network.
Management of Infants with Lymphatic Disorders Clinical Pathway — Inpatient
This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
Congenital Hyperinsulinism International
Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulism.
Going to School with Hyperinsulinism
When you're preparing to send a child with hyperinsulinism to school, these are some important steps you should take to make the process easier for everyone.