International Rett Syndrome Foundation
The International Rett Syndrome Foundation (IRSF) is laser-focused on creating a world without Rett syndrome. For nearly 40 years, we have fueled life-changing advancements in research toward a cure.
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NINDS Rett Syndrome Information
The mission is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease for all people.
Rett Syndrome Primary Care Guidelines
The Rett Syndrome Primary Care Guidelines provide suggested visit schedules by clinical area of assessment, specific concerns to look for and timelines for follow up appointments. Download today to ensure the best care for your child.
Childhood Cancer: A Parent's Guide to Solid Tumor Cancers
This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.
Cancer Hope Network
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Outpatient Oncology Video Tour: Buerger Center
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Buerger Center for Advanced Pediatric Care on the Raymond G. Perelman Campus.
Outpatient Oncology Video Tour: King of Prussia
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the King of Prussia Specialty Care & Surgery Center.
Outpatient Oncology Video Tour: Voorhees
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Specialty Care & Surgery Center in Voorhees, NJ.
Support resources for caregivers
These resources are available to support caregivers of children cared for by the Cancer Center at Children’s Hospital of Philadelphia.