National Cancer Institute — Wilms Tumor and Other Childhood Kidney Tumors
The National Cancer Institute is the nation's trusted source of information about Wilms tumor and other types of childhood cancers.
Caring for your child
Search patient & family resources
Filter By
Type
Aggregated field
Topic
Age group
Audience
Showing 1 - 10 of 30 results
National Wilms Tumor Study
National Wilms Tumor Study is a non-profit federally funded research study.
Gorlin Syndrome Group
The Gorlin Syndrome Group is a network offering guidance and information to patients, their families and caregivers whose lives are affected by Gorlin Syndrome.
NF2 Crew
The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.
Peutz-Jeghers Syndrome and Juvenile Polyposis Syndrome Online Support Group
PJS and JPS is a free online support group for patients, family, friends, researchers and physicians, to discuss Peutz-Jeghers syndrome and Juvenile Polyposis Syndrome.
The International Pleuropulmonary Blastoma Registry
It provides information for families, physicians and caregivers on pleuropulmonary blastoma (PPB), a rare childhood chest tumor.
Histiocytosis Association of America
The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders.
Support resources for caregivers
These resources are available to support caregivers of children cared for by the Cancer Center at Children’s Hospital of Philadelphia.
Undiagnosed Diseases Network (UDN)
Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
National Organization for Rare Disorders (NORD)
An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.