National Cancer Institute — Wilms Tumor and Other Childhood Kidney Tumors
The National Cancer Institute is the nation's trusted source of information about Wilms tumor and other types of childhood cancers.
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Showing 1 - 10 of 23 results
National Wilms Tumor Study
National Wilms Tumor Study is a non-profit federally funded research study.
Gorlin Syndrome Group
The Gorlin Syndrome Group is a network offering guidance and information to patients, their families and caregivers whose lives are affected by Gorlin Syndrome.
NF2 Crew
The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.
Peutz-Jeghers Syndrome and Juvenile Polyposis Syndrome Online Support Group
PJS and JPS is a free online support group for patients, family, friends, researchers and physicians, to discuss Peutz-Jeghers syndrome and Juvenile Polyposis Syndrome.
The International Pleuropulmonary Blastoma Registry
It provides information for families, physicians and caregivers on pleuropulmonary blastoma (PPB), a rare childhood chest tumor.
Histiocytosis Association of America
The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders.
Support resources for caregivers
These resources are available to support caregivers of children cared for by the Cancer Center at Children’s Hospital of Philadelphia.
When Your Teen Has an Eating Disorder: Practical Strategies to Help Your Teen Recover from Anorexia, Bulimia, and Binge Eating
If your teen has an eating disorder—such as anorexia, bulimia, or binge eating—you may feel helpless, worried, or uncertain about how you can best support them. That’s why you need real, proven-effective strategies you can use right away. Whether used in conjunction with treatment or on its own, this book offers an evidence-based approach you can use now to help your teen make healthy choices and stay well in body and mind.
Eating with Your Anorexic: How My Child Recovered Through Family-Based Treatment and Yours Can Too
This poignant and informative narrative relates how one mother rescued her daughter from the "experts" and treated the girl's life-threatening anorexia using a controversial approach. Known as the Maudsley Approach, this home-based, family-centered therapy, developed in Great Britain in the 1980s, has been receiving a lot of press here over the past few years.