Vision’s Connection to Learning Problems: Keep an Eye Out for These Signs
If your child’s vision isn’t 100%, they might have trouble in school. Learn about common vision issues and their symptoms in this health tip.
Caring for your child
Search patient & family resources
Filter By
Type
Aggregated field
Topic
Showing 1461 - 1470 of 1591 results
Spina Bifida Program Transition to Adult Care
Learn how we support children seen in the Spina Bifida Program as they grow to prepare for a smooth transition to adult healthcare.
Frequently Asked Questions about Congenital Diaphragmatic Hernia: Helping You Make Choices About Your Child's Care
More information about congenital diaphragmatic hernia (CDH) to help make choices about your child’s care and choose a CDH treatment center that is right for you.
Keep Kids Safe this Summer!
Summer provides more opportunities for kids to be active and enjoy the outdoors. Unfortunately, it also means more injuries.
Undiagnosed Diseases Network (UDN)
Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
National Organization for Rare Disorders (NORD)
An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.
Applying for Pennsylvania Medical Assistance (PAMA)
This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.
Orphan Disease Program
Visit this website for details on orphan (rare) diseases and treatments. Additional information like drug development, orphan product designations, and how the FDA supports rare disease research. You can also find a list of drugs approved for rare conditions and ongoing clinical trials.
Ryan’s Case for Smiles CopingSpace
This website provides resources for families that of children with any medical diagnosis, including sibling supports, caregiver supports, age appropriate books and resources. They also outline TV shows, educational resources for providers, educators, and mental health resources
RareShare
Create an account to join closed support groups specific to rare genetic conditions including undiagnosed.