AMPS Awareness Association
Our goal is to raise awareness of Amplified Musculoskeletal Pain Syndrome, ensuring timely diagnoses, effective treatments, and a supportive community for children and teens affected by AMPS.
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Nosebleed Prevention and Treatment
This resource from Children's Hospital of Philadelphia (CHOP) includes tips to prevent nosebleeds, steps to stop a nosebleed and additional treatment options.
Community Impact Reports
If you’d like to explore our reports going back to 2012, we have them available just a click away.
Beckwith-Wiedemann Syndrome Support Group – U.K.
Beckwith-Wiedemann Syndrome Support Group – U.K. supports families of children with Beckwith-Wiedemann syndrome, promotes public and professional awareness of BWS, and supports and encourages research.
Genetics Home Reference — Beckwith-Wiedemann syndrome
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.
Medline Plus — Beckwith-Wiedemann Syndrome
Medline Plus is the National Institutes of Health's website for patients and their families and friends.
The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.
Stupid Cancer: The Voice Of Young Adult Cancer
Stupid Cancer is an all-inclusive young adult cancer community that empowers those affected by young adult cancer.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Children's Craniofacial Association (CCA)
The Children's Craniofacial Association empowers and gives hope to individuals and families affected by facial differences.