Adrenal and Puberty Center Resources

Patient Family Education

Screengrab from Solu-Cortef Emergency Injection video

This video provides step-by-step instructions on how to administer Solu-Cortef emergency injection (hydrocortisone injection), also called a "stress dose," during an emergency. The video is also available in Spanish and Arabic.


Books

Congenital Adrenal Hyperplasia: A Parents’ Guide is a comprehensive guide for parents of children with CAH, written in plain English by an endocrinologist and a mother of a child with CAH.


Educational Materials

Find information on how to prepare and administer intramuscular injections (medicine injected into a muscle), what supplies you need, and helpful tips on how to prepare your child for an IM injection.


Websites

The CARES Foundation improves the lives of people affected by CAH around the world.

This campaign is designed to bring light to the complications in finding diagnosis for women with Late Onset CAH, to better educate doctors on symptoms, to better educate women on the inter-workings of their body, and to engender a sense of community.

A blog by Ryan Bregante about what it means to live with Klinefelter syndrome, also known as 47 XXY, including helpful resources, personal stories, local meetings and much more.

The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.