Alagille Syndrome Clinical Care Program Resources


The Alagille Syndrome Alliance (ALGSA) is an international support network for people with AGS and their families. ALGSA provides financial assistance, educational podcasts, research grants, ways to get involved, and much more.

ALF is a national, nonprofit health agency dedicated to preventing, treating and curing liver diseases through research, education and support groups.

This foundation is devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.

ChiLDRN Supports the discovery of new diagnostics, etiologic and treatment options for children with liver disease, and those who undergo liver transplantation.

CLDF is a unique national charity dedicated to taking action against the effects of all liver diseases of childhood.

GeneTests is a medical genetics information resource developed for physicians, genetic counselors, other healthcare providers and researchers.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

PALF aims at identifying, characterizing, and developing management strategies for infants, children, and adolescents who present with acute liver failure.