Alagille Syndrome Clinical Care Program Resources
Alagille Syndrome Alliance
The Alagille Syndrome Alliance (ALGSA) is an international support network for people with AGS and their families. ALGSA provides financial assistance, educational podcasts, research grants, ways to get involved, and much more.
American Liver Foundation
ALF is a national, nonprofit health agency dedicated to preventing, treating and curing liver diseases through research, education and support groups.
Canadian Liver Foundation
This foundation is devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.
Childhood Liver Disease Research Network
ChiLDRN Supports the discovery of new diagnostics, etiologic and treatment options for children with liver disease, and those who undergo liver transplantation.
Children's Liver Association for Support Services (C.L.A.S.S.)
C.L.A.S.S. is a nonprofit, all-volunteer organization, dedicated to serving the emotional, educational and financial needs of families confronting childhood liver disease and transplantation.
Children’s Liver Disease Foundation
CLDF is a unique national charity dedicated to taking action against the effects of all liver diseases of childhood.
GeneTests is a medical genetics information resource developed for physicians, genetic counselors, other healthcare providers and researchers.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Pediatric Acute Liver Failure
PALF aims at identifying, characterizing, and developing management strategies for infants, children, and adolescents who present with acute liver failure.