Cancer Center Resources
Proton Therapy Case Study
P.J. presented with a tumor measuring 3.7 x 3.5 x 7.7 cm in her right mandible. A biopsy of the tumor classified it as Ewing sarcoma. Radiation oncologist and medical director of the Roberts Proton Therapy Center Zelig Tochner, M.D., evaluated P.J.’s case and was quick to recommend proton therapy.
Teach Your Child About Proton Therapy
Use this kid-friendly tour of our Proton Therapy Center to prepare your child for their first day of treatment.
For Parents and Caregivers
Children's Oncology Group Family Handbooks and Diagnosis Guides
The Children's Oncology Group Family Handbook provides families with reliable information about treatment, support, and follow-up care for children and young people with cancer.
Children’s Oncology Group (COG) Mobile App [PDF]
This Smartphone App was designed by the Children’s Oncology Group (COG) nursing team for parents and caregivers of children with cancer. Input from COG experts with recommendations for providing patient and family education was provided.
Facts About Childhood Cancer Infographic
This childhood cancer infographic was designed by the Cancer Center at CHOP to describe challenges facing pediatric cancer researchers, doctors and patients.
Pegfilgrastim Learning Module
Review this module to learn more about pegfilgrastim and how to give the injection to your child.
Psychosocial Services Program [PDF]
At CHOP’s Cancer Center, psychosocial services are considered a vital part of care. The psychosocial team and the medical team communicate and work together to address the needs of the whole child and the entire family.
Patient Family Education
Blood and Marrow Transplant: Education
This step-by-step guide to blood and marrow transplant will explain the information you need to know while your child is in the hospital as well as after your child goes home.
Chemo, Craziness & Comfort: My book about childhood cancer
This book provides clear explanations and practical advice for children ages 6-12 through warm and funny illustrations to help them make sense of cancer and its treatment.
Childhood Brain & Spinal Cord Tumors: A Guide for Families
This guide includes descriptions of the newest brain and spinal cord tumor treatments, as well as practical advice about how to cope with the diagnosis.
Childhood Cancer Survivors: A Practical Guide to Your Future
This guide addresses the way that the surgery, radiation, and chemotherapy used to cure childhood cancers can affect growing bodies and developing minds.
Childhood Cancer: A Parent's Guide to Solid Tumor Cancers
This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.
Childhood Leukemia: A Guide for Families, Friends & Caregivers
Childhood Leukemia is a book that offers both medical and support information about leukemia in children, along with stories from patients and families.
Drums, Girls, and Dangerous Pie
This is a book for siblings of children with cancer. The main character's world is turned upside down when his brother is diagnosed with leukemia, and he must deal with all the ways his own life changes as a result.
Imagine What's Possible: Using the Power of Your Mind to Help Take Control of Your Life During Cancer
This illustrated healing guide introduces the technique of visualization. It offers children with cancer an effective way to deal with anxiety, pain, fear and the many other challenges.
Kathy's Hats: A Story of Hope
This is a story of a 9-year-old who has always enjoyed wearing hats. But when she loses her hair from cancer treatments, suddenly hats aren't so much fun anymore.
Shelter From The Storm: Caring For A Child With A Life-threatening Condition
Shelter From The Storm is a compassionate road map to what families of children with life-threatening conditions may have to face.
The C- Word: Teenagers and their Families Living with Cancer
In this book, five teens with cancer, their families and best friends are interviewed about the effects the disease has had on their lives.
You and Leukemia: A Day at a Time
Beautifully-illustrated oncology book written for children with leukemia and their parents. Offers a basic, medically accurate explanation of all phases of leukemia, including causes, effects, and treatments.
Your Child in the Hospital: A Practical Guide for Parents
Your Child in the Hospital is a practical book of tips and wisdom from veteran parents that will help make any hospital stay easier.
Camp Mak-A-Dream offers sessions for cancer patients and their siblings. It's located in Gold Creek, Montana.
It's a kosher camp for children with cancer and other life-threatening illnesses, located on 125 acres in Glen Spey, New York. The camp is one of the many services provided by Chai Lifeline.
Hole in the Wall Gang Camp
It serves children between the ages of 7 and 15 who have been diagnosed with cancer or serious blood disorders. Located in Ashford, Connecticut, this camp is free.
Ronald McDonald Camp
This is an overnight camp for kids with cancer and their siblings. It's run by CHOP's Oncology division staff, and provides 24-hour on-site medical coverage.
After the Diagnosis: Helping My Family Cope [PDF]
After the Diagnosis: Helping My Family Cope is an information sheet for families from The Children's Hospital of Philadelphia that offers advice for coping with the stress of a cancer diagnosis.
Guided Relaxation Exercises
These guided videos and audio recordings can help create a more peaceful and restful state of mind for parents, caregivers, and adolescent/young adult patients.
Educational and Social Resources for Patients and Families
Adolescent and Young Adult FAQs [PDF]
If you are an adolescent or young adult (AYA) with cancer, you probably have many questions. We understand that not everyone wants to ask their questions out loud, so we’ve compiled a list of those that are often asked.
Research Study: Adolescent and Young Adult Oncology Peer Mentoring
In peer mentoring, a person who has lived through a specific experience mentors a person who is new to that experience. Children’s Hospital of Philadelphia is conducting a research study of peer-to-peer mentoring for oncology patients.
Resource Guide for Adolescent and Young Adult Survivors of Cancer [PDF]
The Resource Guide for Adolescent and Young Adult Survivors of Cancer offers important resources that may be helpful to adolescent and young adult (AYA) survivors of cancer.
The Cellie Cancer Coping Kit
The Cellie Cancer Coping Kit, developed by experts at CHOP, includes a stuffed toy, cancer coping cards, and a book for caregivers.
Girl on the Go
Girl on the Go provides a private in-home wig consultations for girls and woman going through chemotherapy.
Hair Club for Kids
Hair Club for Kids provides free hair restoration for children battling hair loss as a result of illness.
Hip Hats with Hair
It provides hats with human or synthetic hair attached for girls with hair loss due to chemotherapy.
Locks of Love
Locks of Love offers hairpieces to financially disadvantaged children who are suffering from long-term medical hair loss from any diagnosis.
Wigs for Kids
Wigs for Kids is a non-profit organization that provides wigs and accepts hair donations.
Cancer Connections Family Newsletter Sign Up Form
Be among the first to know about our latest breakthroughs – big and small. Subscribe to receive Cancer Connections, a special e-newsletter for families that includes: updates on our research and treatment advances, patient stories, profiles of our clinicians, news about special Cancer Center events and much more!
AYA Cancer Chat: Life Interrupted
Listen in to podcast where adolescents and young adults (AYA) from the Cancer Center at The Children's Hospital of Philadelphia discuss their experiences with cancer diagnosis and treatment.
Life: With A Side of Cancer
Two young adults, Vinnie Cent and Sierra Missed, talk about LIFE, their experiences with cancer, and ways to elevate the young adult cancer community through conversation. Bon Appetit!
Fertility Options for Young Female Cancer Patients
The Children's Hospital of Philadelphia has one of the best fertility preservation programs in pediatric oncology, offering choices for teenagers and young women as well as girls who have not yet experienced puberty.
Fertility Preservation for Boys Treated for Cancer
While preserving fertility is an important topic for families to discuss before cancer treatment begins, it can also lead to some uncomfortable conversations.
Support and Education Groups
Cancer Support Community Greater Philadelphia
Provides a safe and supportive environment dedicated to providing support, education and hope to people affected by cancer.
Gilda's Club South Jersey
It offers support groups, lectures, workshops and social events as a supplement to medical care in a warm and welcoming home-like setting.
Tools for Success at School
Facilitating School Reentry for Your Child with Cancer: A Parent's Guide
Being prepared and informed can help facilitate a smoother transition when your child with cancer returns to school.
Welcoming a Child with Cancer Back to School: Educator’s Guide
This handbook is designed to assist educators in welcoming a child with cancer into the school environment and providing them with support during and after treatment.
Advanced Options for High-Risk Oncology Patients
This video series is designed to help referring oncologists and families better understand the different treatment options for patients with difficult or hard to treat cancers.
Art of Caregiving: Living a Life of Balance
Social workers discuss the complexities of caregiving, how to have caring, honest conversation with members of the family around the topic of caregiving, and offer tips on how to manage the unique role of the caregiver.
Dealing With the Challenges of Childhood Cancer and Treatment
Psychologist Meghan Marsac discusses coping strategies for families facing childhood cancer.
Experimental Therapy for Pediatric Cancer at Children's Hospital of Philadelphia
Pediatric cancer researchers discuss clinical trials, which are among the fastest and safest ways to find treatments that work against pediatric cancer.
How Cancer Immunotherapy Works: A Cartoon for Kids
This animation explains to children how cancer immunotherapy (T-cell therapy) works in simple terms that kids can understand.
Outpatient Oncology Video Tour: Buerger Center
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Buerger Center for Advanced Pediatric Care on the Raymond G. Perelman Campus.
Outpatient Oncology Video Tour: King of Prussia
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the King of Prussia Specialty Care & Surgery Center.
Outpatient Oncology Video Tour: Voorhees
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Specialty Care & Surgery Center in Voorhees, NJ.
Pediatric Brain Tumor Research: Presentation by Experts from The Children's Hospital of Philadelphia
Pediatric brain tumor experts from the Children's Brain Tumor Tissue Consortium (CBTTC) at CHOP discussed the latest research in pediatric neuro-oncology in a webinar held May 15, 2015.
PTSD and Post-traumatic Growth After Childhood Cancer
Dr. Lamia Barakat discusses the ways childhood cancer affects the child, parents and siblings, focusing on the experience of post-traumatic stress symptoms and post-traumatic growth.
Supporting Siblings After Losing a Child to Cancer
In this webinar, art therapist and licensed professional counselor, Jennifer Lemisch discusses the fears and worries of children who have lost a sibling, and offers guidance to parents in this situation.
Taking On Challenges: Surgical Oncology Options for Solid Tumors
CHOP's pediatric surgical oncology team consists of experts with extensive experience in various types of cancers, including neuroblastoma, brain and bone tumors, as well as other rare and hard-to-treat cancers.
The Sibling Experience: Pediatric Families Coping With Childhood Cancer
Psychologist Lynne Kaplan, PhD, and child life specialist Sarah Pajak discuss the experience of siblings of a childhood cancer patient.
Thriving in School After Treatment
In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.
Video Tour: Cancer Immunotherapy
Take a tour of the Cancer Immunotherapy Program with Paulina, who traveled to Philadelphia from Mexico for T-cell therapy for acute lymphoblastic leukemia.
Video: Inpatient Rehabilitation at Children's Hospital of Philadelphia
Watch a video about inpatient rehabilitation services for children and adolescents at Children's Hospital of Philadelphia (CHOP).
Video: Proton Therapy Center
Proton therapy is an alternative to traditional radiation treatment. We've taken the lead in this breakthrough new treatment by investing in the Roberts Proton Therapy Center.
Video: Proton Therapy for Pediatric Brain Cancer
Proton therapy is an alternative to traditional radiation treatment for childhood brain tumors. Learn how it works.
2bme is home to a collection of short articles for teens with cancer. Topics include handling non-medical issues like diet, body image and relationships.
American Cancer Society
The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.
American Childhood Cancer Organization
The American Childhood Cancer Organization® is the largest publisher and distributor of free childhood cancer books in the country.
American Society of Clinical Oncology (ASCO)
The American Society of Clinical Oncology (ASCO) is the voice of the world’s cancer physicians. ASCO’s patient information website (Cancer.Net) brings the expertise and resources of ASCO to people living with cancer and those who care for and care about them.
Andre Sobel River of Life Foundation
The Andre Sobel River of Life Foundation helps with urgent expenses to allow single parents to stay at their child's bedside during catastrophic illness.
Beyond the Cure
It awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation.
Brian Morden Foundation
Provides funds for Ewing's sarcoma and childhood cancer research; supports patients and families; and provides higher education scholarships.
Cancer Hope Network
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
Cancer Survivors Network
The Cancer Survivors Network of the American Cancer Society offers discussion boards and chatrooms where you can meet your CSN "neighbors" and develop friendships.
Cancer Survivors' Fund
A non-profit organization providing college scholarships and prosthetics to benefit people diagnosed with cancer, receiving treatment for cancer or in remission.
CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial assistance to people facing a cancer diagnosis.
CancerCare for Young Adults
Offers specialized services for young adults, caregivers and those who have lost a loved one
It lets you create a free website that acts as a virtual diary of your child's cancer experience. Update it at anytime, from anywhere, to keep your family and friends up to date.
Chai Lifeline offers programs that address the emotional, social and financial needs of seriously ill children and their families.
It offers support to those who find themselves in the most challenging situation of their lives — battling a cancer diagnosis and undergoing treatment.
Children’s Neuroblastoma Cancer Foundation
The Children’s Neuroblastoma Cancer Foundation (CNCF) is the premier source for neuroblastoma information and resources.
Coping With Chemo
Helps teens with cancer navigate their chemotherapy treatments through education and by fostering connections with others through blogging and chat rooms.
Critical Mass is a coalition of organizations which have the collective goal to improve survival rates and quality of life for young adults with cancer.
CureSearch for Children's Cancer contains a wealth of information on diagnosis and treatment of childhood cancer and the late effects of cancer therapy. CureSearch provides educational and coping resources to families affected by childhood cancer.
Eagles Fly for Leukemia
Supports pediatric cancer and leukemia research at three Delaware Valley hospitals, helping their world renowned scientists in the quest for a cure
Family Medical Leave Act (FMLA)
The FMLA allows eligible employees up to a total of 12 work weeks of unpaid leave during any 12-month period in order to care for their seriously ill child.
Offers young adult cancer fighters and survivors a free outdoor adventure experience designed to empower them to climb, paddle and surf beyond their diagnosis.
For Proton Families: Ella's Retreat
Ella's Retreat helps families with children receiving proton therapy at CHOP find and pay for a place to stay during treatment.
Group Loop provides online support, information and resources for teens living with cancer and their families.
Headcovers Unlimited has hats, turbans and wigs for hair loss and cancer patients.
Hereditary Paraganglioma-Pheochromocytoma Syndromes
NCBI's GeneReviews offers detailed information about hereditary paraganglioma-pheochronocytoma syndromes, disease characteristics, diagnostic testing, treatment options and more.
Is a one-on-one cancer support service that connects a person fighting cancer with a survivor who has beaten the same type of cancer.
Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary (nonprofit) health organization dedicated to funding blood cancer research and providing education and patient services.
Long-Term Follow-Up for Childhood Cancer Survivors
Learn about the potential late effects of pediatric cancer treatment, including their screening and management.
Lotsa Helping Hands
Lotsa Helping Hands lets you create a free, private, online community to organize family, friends, neighbors and colleagues during times of need.
Michael A. Hunter Memorial Scholarship
The Michael A. Hunter Memorial Scholarship Fund awards annual scholarships to help improve the quality of life for those affected by leukemia/lymphoma.
National Brain Tumor Society
The National Brain Tumor Society is committed to moving research toward new treatments, fighting for policies that improve lives, and providing information and resources.
National Cancer Institute
NCI's website includes links to information about treatment, clinical trials, testing and research.
National Cancer Institute Dictionary of Cancer Terms
The NCI Dictionary of Cancer Terms features 8,250 terms related to cancer and medicine.
National Coalition for Cancer Survivorship
The mission of the National Coalition for Cancer Survivorship is to advocate for quality cancer care for all people touched by cancer.
OncoLink is a website maintained by the Abramson Cancer Center at the Hospital of the University of Pennsylvania. It features a wide variety of information on adult and pediatric cancers.
Pediatric Brain Tumor Foundation
The Pediatric Brain Tumor Foundation provides free educational information about brain tumors, college scholarships and Ride for Kids motorcycle charity events.
Pheo Para Troopers
The Pheo Para Troopers provides information and resources about pheochromocytoma and paraganglioma for patients and families.
Planet Cancer is an online community for people in their 20s and 30s with cancer.
Prepare to Live
Prepare to Live is the only nonprofit, charitable organization founded and managed by cancer survivors, dedicated to using the power of the Web and documentary-style filmmaking.
Sara's Smiles Foundation
Sara's Smiles Foundation provides a variety of resources to entertain, comfort and educate children with cancer.
Sibling Support Project
It's a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
Songs of Love
It's a nonprofit organization dedicated to providing personalized songs for children and teens currently facing tough medical, physical or emotional challenges, free of charge.
Special Kids Network
It provides information to families in PA regarding special health issues and community resources. It also links families facing similar experiences together.
Volunteers from Special Spaces interview the child and family and in one day of work, create a dream room at no cost to the family.
Starlight Children's Foundation
It provides entertainment, education and family activities to help children with chronic and life-threatening illnesses to cope with the pain, fear and isolation of prolonged illness.
Stupid Cancer: The Voice Of Young Adult Cancer
Stupid Cancer is an all-inclusive young adult cancer community that empowers those affected by young adult cancer.
Team IMPACT is a nonprofit chartered to improve the quality of life for children facing life-threatening illnesses.
The Canuso Foundation
It has raised more than $2 million for cancer research at The Children’s Hospital of Philadelphia and has provided assistance and support to countless families and individuals affected by cancer.
The National GRACE Foundation
It provides free college admissions and financial aid counseling to high-school and college-aged children and their families who are dealing with issues related to pediatric cancer.
Young (cancer) Spouses
This website provides practical information from other young cancer spouses about the issues facing young couples fighting cancer.