Center for Fetal Diagnosis and Treatment Resources

Learning your baby has a birth defect is a life-changing experience, and we want you to know that you are not alone. To help you find answers to your questions -- either before or after visiting the Center for Fetal Diagnosis and Treatment -- we've created this list of educational health resources.
Learn the Facts about Spina Bifida

Did you know that spina bifida is the most common permanently disabling birth defect in the U.S.? Learn more spina bifida facts and help spread the word.

what is fetal surgery infographic title

Get the facts about fetal surgery then share this infographic with your friends and family to help raise awareness of the ways babies can be treated for serious and life-threatening conditions even before they’re born.

Support Groups

Mama Care combines prenatal care, childbirth education and a support group into one program for healthy mothers giving birth in the Garbose Family Special Delivery Unit at Children’s Hospital of Philadelphia.

The CFDT parent support group offers a supportive setting to connect with peers and learn mindfulness techniques to promote anxiety and stress reduction.


Directions, Maps & Parking

Use these maps to see the layout of the entire Main Campus, including floor maps of the Main Hospital, Wood Center, Seashore House and Buerger Center.


Accommodations

Hosts for Hospitals is a unique nonprofit program that provides accommodations in the homes of local families at minimal or no cost to families whose homes are far away.

The Ronald McDonald House serves as a "home-away-from-home" for families whose children are being treated at nearby hospitals. The Philadelphia Ronald McDonald House has rooms available for patient families as well as mothers undergoing fetal surgery or delivering in CHOP’s Special Delivery Unit.

The Ronald McDonald House serves as a "home-away-from-home" for families whose children are being treated at nearby hospitals. The Ronald McDonald House of Southern New Jersey has rooms available for patient families as well as mothers undergoing fetal surgery or delivering in CHOP’s Special Delivery Unit.


Hospital Amenities

The Center for Families, located on the first floor of the Main Building, provides families with a welcoming space as well as assistance with housing, transportation and local resources.

The Connelly Resource Center is located on the 8th floor of the Main Hospital. Inside, families will find a family and children's library, a learning center and a hospitality area for free services such as laundry, business needs, naps, learning or relaxing.


Pregnancy

The American Pregnancy Association is a national health organization that promotes reproductive and pregnancy wellness through education, support, advocacy and community awareness.

This book is for children ages 2-10 whose mother is on pregnancy bed rest. It will help children better understand, be less fearful and realize there is an end to the bed rest experience.

Birth Source promotes positive pregnancy outcomes through education, promotion of evidence-based research, family-centered care, maternal-child health advocacy, and awareness.

Women undergoing bed rest during pregnancy will benefit from the insight McCann gained as she successfully endured both an at-home as well as extended hospital bed rest.

About.com offers free online childbirth classes that include a comprehensive discussion of labor and birth from a certified childbirth educator and RN.

Medline Plus' Pregnancy website offers late-breaking news, health advice, pregnancy anatomy and physiology, prenatal nutrition, and much more.

Sidelines is a national nonprofit organization that provides support to women who are on bed rest during pregnancy.

This book includes information on how to prepare for labor; epidurals and other medications for labor; cesarean birth, breastfeeding and newborn care and much more.

Amy E. Tracy shares her experiences ─ and those of many others ─ to help you and your family not only survive but thrive during your pregnancy.

Baby and childcare experts, Dr. Bill and Martha Sears, tell you what to expect, month by month, from conception through birth in this comprehensive guide.

When Pregnancy Isn't Perfect is a companion, adviser and lifeline for the thousands of women who face the prospect of a problem pregnancy.


Postpartum Depression


Videos

Birth of a Breakthrough: Spina Bifida Video

This spina bifida video series talks about how to deal with a spina bifida diagnosis for your unborn child, from prenatal diagnosis, to treatment options, delivery and follow-up care at Children's Hospital of Philadelphia.

Breathing Easier: Fetal Lung Anomalies Video

In this video series, doctors and nurses from The Children’s Hospital of Philadelphia describe the diagnosis and treatment of different fetal lung anomalies.

Inside Out: Understanding Abdominal Wall Defects (AWD) Video

In this video series, doctors, nurses and parents talk about abdominal wall defects, including omphaloceles and gastroschisis, and how these conditions are diagnosed and treated at The Children's Hospital of Philadelphia.

Teratomas Video Series

In this video, clinicians from Children's Hospital of Philadelphia explain the diagnosis and treatment of various types of teratomas, or fetal tumors.


Websites

Breath of Hope raises awareness of congenital diaphragmatic hernia (CDH) by educating and supporting parents, family members, medical professionals, and anyone who wants to learn more about CDH.

CDH International is a global collective of hospitals, researchers, and charities working together to stop congenital diaphragmatic hernia with a focus on advancing CDH research and accrediting hospitals and charities.

Find comprehensive breastfeeding information, online forums and support groups, FAQs, conferences, an international online store, and more.

March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.

Peyton’s Promise helps raise awareness and money for ongoing congenital diaphragmatic hernia (CDH) research. It was founded by Debbie and Dustin Laricks, whose daughter Peyton was born with CDH.

The Spina Bifida Association is a comprehensive source of information and resources about spina bifida, the most common permanently disabling birth defect in the United States.

The TTTS Foundation's website offers information for families during and after pregnancy, research updates, a message board, and more.


Coping

These guided audio recordings can help create a more peaceful and restful state of mind for parents, caregivers, and adolescent/young adult patients.

Perinatal Hospice is an online resource for expectant families who plan to continue their pregnancy with a baby with a terminal diagnosis.

Twinless Twins Support Group helps twins and other multiples who have lost their twin by providing a safe and compassionate community for twinless twins to experience healing and understanding. 


Books

Kathleen Huggins equips breastfeeding mothers with all the information they need to overcome potential difficulties and nurse their babies successfully.

This book provides information on how to get started with breastfeeding, including tips for latching on, increasing your milk supply, breastfeeding in absentia, breast pumps and more.