CHiPPS identifies, develops and shares practical strategies that advance care for children and families coping with life-threatening conditions, dying and bereavement. English and Spanish brochures available.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
The National Institute of Nursing Research (NINR), developed the Palliative Care: Conversations Matter ® campaign to increase the use of palliative care for children and teens living with serious illnesses.