Congenital Hyperinsulinism Center Resources

See how far our hyperinsulinism patients have come since their diagnosis and treatment at the Congenital Hyperinsulinism Center at Children's Hospital of Philadelphia.

For Parents and Caregivers

When you're preparing to send a child with hyperinsulinism to school, these are some important steps you should take to make the process easier for everyone.


Videos

Adriana had focal hyperinsulinism (HI), and a special PET scan pioneered at CHOP was instrumental in finding the part of her pancreas that was making too much insulin.

Paige’s family initially sought treatment for her HI at another hospital, but her blood sugar wouldn’t stay in the safe range. Her parents brought her to CHOP.


Websites

Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulism.

Our goal at the Congenital Hyperinsulinism Center is to help you take your child home as soon as possible, either cured of hyperinsulinism or on a safe and manageable treatment plan.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.