Craniofacial Program Resources

https://www.asha.org

ASHA is the national professional, scientific and credentialing association for audiologists; speech-language pathologists; speech, language and hearing scientists; audiology and speech-language support personnel; and students.

Learn more about craniosynostosis and surgical treatment for the condition.

Learn more about jaw surgery and how it's managed at CHOP.

In this video, experts from Children’s Hospital of Philadelphia explain why highly specialized, comprehensive care is so important for children with Beckwith-Wiedemann syndrome.

In this video, clinicians and patient families talk about the diagnosis and treatment of craniofacial conditions, including craniosynostosis, hemifacial microsomia, and other syndromes.

https://groups.yahoo.com/neo/groups/adoptcleft/info

AdoptCleft is a support group for parents wanting to adopt cleft children, parents that have cleft children (biological or adopted), and others that can contribute or learn from the conversations. 

https://acpa-cpf.org

ACPA is an international nonprofit medical society of healthcare professionals who treat and/or perform research on birth defects of the head and face.

https://www.plasticsurgery.org/reconstructive-procedures/cleft-lip-and-palate-repair

The American Society of Plastic Surgeons (ASPS) offers information about cleft lip and cleft palate repairs.

https://www.changingfaces.org.uk/

Changing Faces provides support and promotes respect for everyone with a visible difference. Helpful resources include advice for meeting new people when you have a visible difference.

http://www.ccakids.com

The Children's Craniofacial Association empowers and gives hope to individuals and families affected by facial differences.

http://www.cleftadvocate.org

The Cleft Advocate educates and inspires families whose lives are touched by cleft lip and/or palate or other craniofacial anomalies.

http://www.faces-cranio.org

FACES: The National Craniofacial Association assists children and adults who have craniofacial disorders resulting from disease, accident or birth.

http://www.22q.org/

The Foundation provides medical, educational, psychosocial and local support resources for people with the 22q11.2 deletion syndrome and their families.

http://www.marchofdimes.com

March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.

https://www.psha.org

PSHA advocates for the communicatively disabled and the professionals who serve them to insure that the integrity of services is maintained.

http://www.phillyphaces.org/

Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.