Division of Neurology Patient Stories
1 - 10 of 48
Hassani’s Story: Hemispherotomy to Control Seizures from Hemimegalencephaly

Learning that their child has a brain condition was a traumatic experience for Samia and Andre.
Katie Grace’s Story: Whole Genome Sequencing to Diagnose Leukodystrophy

Katie Grace’s balance and mobility issues were a mystery until a neurologic issue was identified as the cause. Whole genome sequencing through a clinical trial led by CHOP’s Leukodystrophy Center provided a clear diagnosis and a plan forward.
Hemispherotomy Brain Surgery to Treat Epilepsy: Colton’s Story

Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.
Hemispherotomy Surgery to Treat Seizures: Matthew’s Story

Matthew has been through a lot in his young life. Thankfully, between his adoptive parents and his medical team at CHOP, he’s got a great support team in his corner.
Learning to Grieve: Joseph “Joey” Nolan’s Story

Support from CHOP’s palliative care and bereavement specialists helped Joey’s family through the heartbreaking experience of losing a child and brother.
Medical Management of Rett Syndrome: Clare’s Story

The knowledge and support they have received from their care team at CHOP has helped Clare’s parents manage her progressive neurodevelopmental disorder.
Michael’s Story: Medical Management and Follow-Up After Perinatal Stroke

Brett and Jennifer will never forget the relief that came over them when paramedics arrived to transport their newborn son, Michael, to Children’s Hospital of Philadelphia.
Thomas’s Story: Prenatal Diagnosis and Postnatal Surgical Repair of Encephalocele

One family shares their experience for parents who learn their child has a severe diagnosis before birth
Morgan’s Story: Overcoming Brain Injury After Ischemic Stroke

After just a year of care from CHOP’s Pediatric Stroke Program, 16-year-old Morgan has regained her ability to speak and is back to doing the sports she loves.
Duchenne Muscular Dystrophy: Cooper’s Story

Cooper was one of the first at CHOP to receive a new FDA-approved infusion therapy for Duchenne muscular dystrophy, which is given to him at home. Results are promising.