Division of Neurosurgery Patient Stories

There was no “book” Ellen could refer to for medical guidance on her son, Evan, who has a rare genetic mutation.

Devon underwent surgery, chemotherapy and proton therapy for a brain tumor the size of a softball. Within months, she started college and made the Dean’s List.

Sara lived with seizures until age 9. Her family flew 7,000 miles from United Arab Emirates so she could undergo epilepsy surgery at Children’s Hospital of Philadelphia. Every day since, Sara has told her mom how happy she is to have had the procedure.

Learning that their child has a brain condition was a traumatic experience for Samia and Andre.

Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.

Matthew has been through a lot in his young life. Thankfully, between his adoptive parents and his medical team at CHOP, he’s got a great support team in his corner.

When Laurel was diagnosed with hydrocephalus while she was still in the womb, her parents turned to the best team to give their daughter the best chance in life.

One family shares their experience for parents who learn their child has a severe diagnosis before birth