Division of Rheumatology Resources

If your child is referred outside of CHOP for a uveitis evaluation, please ask the eye doctor to complete the Uveitis Assessment Form and bring it with you to your child’s appointment at CHOP. You can also upload it using MyCHOP or fax it to 215-590-4750.

Learn more about the common medications prescribed to children with rheumatologic diseases.

• Rasuvo®
• Humira®
• Enbrel®
• Kineretrx®

Learn about joint injections as a treatment for children with arthritis. High-dose steroid is injected directly into the joint, most commonly the temporomandibular joint in the jaw or the subtalar joint in the foot.

This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.

This resource from Children’s Hospital of Philadelphia provides information on 504 plans, which ensure reasonable accommodations for children who qualify.

This video provides step-by-step instructions on how to administer Solu-Cortef emergency injection (hydrocortisone injection), also called a "stress dose," during an emergency. The video is also available in Spanish and Arabic.

Getting a needle (immunizations or a blood test) can be scary. Find tips on what you can do to help prepare your child.

Find step-by step instructions on how to change powdered medicine into a liquid form.

https://media.chop.edu/data/files/pdfs/rheum-specialty-medication-tip-sheet.pdf

The goal of this tip sheet from the Division of Rheumatology at Children’s Hospital of Philadelphia (CHOP) is to help patients and families get a clear understanding of the specialty medication process, the tools you need to order specialty medication refills and who to call if you have a concern.

Find information on how to protect your child from sunburns, the symptoms of sunburns and how to treat them.

Adolescents with chronic illnesses, including arthritis, need guidance and a plan for the future in order to safely transition to an adult provider.

http://www.otrexup.com/index.php?cID=167

Provides information and step-by-step instructions on how to self-administer Otrexup™ (methotrexate) injection for subcutaneous use for the treatment of rheumatoid arthritis.

https://www.rheumatology.org/I-Am-A/Patient-Caregiver

Offers information about rheumatic diseases and conditions, treatment options, patient education videos, resources for assistance, in addition to information about the healthcare professionals who care for patients with rheumatic diseases.

https://www.arthritis.org

Find information about arthritis, treatment options, pain management and more. Learn about advocacy and ways you can get involved. Search for a local office and find upcoming events in your area.

http://campvictory.org/

Sponsored by the Arthritis Foundation, Camp JRA offers a place for children with arthritis to have fun, make new friends and learn how to take control of their disease.

http://www.curejm.org/index.php

A nonprofit organization dedicated to finding a cure for Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM). Find information about JDM and JPM, and how you can get involved and stay connected through the various support networks offered by the Foundation.

http://www.chop.edu/centers-programs/individualized-medical-genetics-center-imgc

The Individualized Medical Genetics Center (IMGC) team is made up of a specialized group of physicians and genetic counselors at CHOP. The team is available to coordinate a range of genetic testing and fully explain the results to you and your family.

http://www.lupus.org/

Get answers about lupus, its diagnosis and treatment options. Find help and resources, read news and stories, and learn about the Lupus Foundation of America national research program.

https://scleroderma.org/

Offers a nationwide network of 24 chapters and more than 150 support groups, a toll-free helpline providing information and referrals, and educational materials including "Scleroderma Voice" magazine, brochures, booklets and newsletters.

http://www.spondylitis.org/

SAA is the largest resource in the United States for people seeking information on AS and related diseases. If offers educational materials about spondyloarthritis, information about support groups and other ways to connect with others, as well as ways for you to get involved by supporting SAA.