In Pursuit of Cure for a Rare Degenerative Disease
Published on in Children's View
A rare degenerative disease strikes during childhood. A multimillion-dollar gift is fueling CHOP scientists’ search for a cure.
Friedreich's Ataxia Program News and Updates
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Friedreich’s Ataxia: Taking Shots on Goal for a Rare Disease
Published on in Neurosciences Update, International Update
Researchers rarely use the word "cure" when studying a rare disease with no approved therapies. At the Friedreich's Ataxia Center of Excellence, the word "cure" is now in the lexicon.
Amazing Grace
Published on in Children's View
The new Friedreich’s Ataxia Center of Excellence gives hope and education to Grace Haupt and patients just like her.
$3.25 Million Gift Creates Friedreich’s Ataxia Center of Excellence
Published on in CHOP News
Donations from Friedreich’s Ataxia Research Alliance and the Hamilton and Finneran Families helps launch Penn Medicine/CHOP Center to improve research and care for Friedreich's Ataxia, a rare, degenerative disease.