Heart Failure and Transplant Program Resources
Pediatric Transplant Center Financial Counseling
The Transplant Center has a dedicated financial counselor who will work with you and your insurance company to obtain detailed insurance benefits for all aspects of the transplant process.
Camps
Camp Jeremy
https://www.donors1.org/patients/resources-for-transplant-patients/scholarships-and-camps/camp-jeremy/
Blue Bell, PA: Camp Jeremy is a week-long day camp for children ages 6 to 16 years who have undergone a life-saving organ transplant, and their siblings.
Websites
American Organ Transplant Association (AOTA)
http://www.aotaonline.org
The American Organ Transplant Association helps to make organ transplant surgery, travel and aftercare available to patients and their families.
American Society of Transplantation (AST)
https://www.myast.org
AST is an organization of transplant professionals dedicated to research, education, advocacy and patient care in transplantation science and medicine.
Children's Organ Transplant Association
http://www.cota.org/
COTA exists to assist patients who require a life-saving transplant by providing fundraising assistance and family support.
Donate Life America
http://www.shareyourlife.org/
This a not-for-profit alliance of national organizations and state teams across the U.S. committed to increasing organ, eye and tissue donation.
Gift of Life
http://www.donors1.org/
Gift of Life is the organ and tissue procurement organization (OPO) serving eastern Pennsylvania, southern New Jersey and Delaware.
Gift of Life Family House
http://www.giftoflifefamilyhouse.org/
The Gift of Life Family House provides critically needed support programs and temporary lodging for organ transplant patients and their families.
International Society for Heart and Lung Transplantation (ISHLT)
http://ishlt.org
ISHLT is a multidisciplinary, professional organization dedicated to improving the care of patients with advanced heart or lung disease.
National Foundation for Transplants (NFT)
http://www.transplants.org/
The National Foundation for Transplants provides fundraising assistance to patients for the portion of transplant costs not covered by insurance.
National Heart, Lung, and Blood Institute (NHLBI)
http://www.nhlbi.nih.gov
NHLBI provides health information to the public and healthcare professionals to promote the prevention and treatment of heart, lung, and blood diseases.
Transplant Recipients International Organization (TRIO)
http://www.trioweb.org/about.html
TRIO is committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
Transplant Recipients International Organization, Inc.
http://www.trioweb.org/
The Transplant Recipients International Organization offers transplant and donation information and resources.
U.S. Department of Health and Human Services' Donation Initiative
http://organdonor.gov/index.html
The U.S. Department of Health and Human Services' Donation Initiative provides information about organ donation.
United Network for Organ Sharing (UNOS)
https://unos.org/
UNOS is a private, nonprofit organization managing the nation's organ transplant system under contract with the federal government.