Liver Transplant Program Resources

The Transplant Center has a dedicated financial counselor who will work with you and your insurance company to obtain detailed insurance benefits for all aspects of the transplant process.

Watch a video that introduces the Liver Transplant Program at Children’s Hospital of Philadelphia, which does around 20 pediatric liver transplants a year for children suffering from a host of conditions, including biliary atresia.

http://www.amazon.com/It-gets-dark-sometimes-sisters/dp/B0006RF106

This is a book for adults in which Pulitzer Prize winner Jeffrey Marx chronicles his sister's fight with liver disease and her two liver transplants.

http://www.amazon.com/Lizzy-Gets-New-Liver-Ribal/dp/1578950198

Lizzy Gets a New Liver by Lizzy Ribal is a 34-page, spiral bound book for children that tells the story of a liver transplant from Lizzy's perspective.

http://www.amazon.com/Edge-Back-Transplant-Survivor-Snowboarder/dp/0786714220/ref=sr_1_1?s=books&ie=UTF8&qid=1398188610&sr=1-1&keywords=to%20the%20edge%20and%20back

To the Edge and Back is a book by Chris Klug about his journey from receiving a liver transplant to becoming an Olympic snowboarder and the first Olympic athlete to win a medal after an organ transplant.

https://liverfoundation.org

ALF is a national, nonprofit health agency dedicated to preventing, treating and curing liver diseases through research, education and support groups.

https://rarediseases.org/organizations/american-organ-transplant-association/

The American Organ Transplant Association helps to make organ transplant surgery, travel and aftercare available to patients and their families.

https://www.myast.org

AST is an organization of transplant professionals dedicated to research, education, advocacy and patient care in transplantation science and medicine.

https://www.liver.ca/

This foundation is devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.

http://www.childrennetwork.org/

ChiLDRN Supports the discovery of new diagnostics, etiologic and treatment options for children with liver disease, and those who undergo liver transplantation.

https://www.classkids.org/

C.L.A.S.S. is a nonprofit, all-volunteer organization, dedicated to serving the emotional, educational and financial needs of families confronting childhood liver disease and transplantation.

http://www.cota.org/

COTA exists to assist patients who require a life-saving transplant by providing fundraising assistance and family support.

http://www.childliverdisease.org

CLDF is a unique national charity dedicated to taking action against the effects of all liver diseases of childhood.

http://www.shareyourlife.org/

This a not-for-profit alliance of national organizations and state teams across the U.S. committed to increasing organ, eye and tissue donation.

http://www.donors1.org/

Gift of Life is the organ and tissue procurement organization (OPO) serving eastern Pennsylvania, southern New Jersey and Delaware.

http://www.giftoflifefamilyhouse.org/

The Gift of Life Family House provides critically needed support programs and temporary lodging for organ transplant patients and their families.

http://www.transplants.org/

The National Foundation for Transplants provides fundraising assistance to patients for the portion of transplant costs not covered by insurance.

http://www.niddk.nih.gov/Pages/default.aspx

NIDDK is a branch of the National Institutes of Health that offers health and research information about a variety of digestive diseases that can affect the liver.

https://www.clinicaltrials.gov/ct2/show/NCT00986648

PALF aims at identifying, characterizing, and developing management strategies for infants, children, and adolescents who present with acute liver failure.

https://www.trioweb.org/

TRIO is committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.

http://www.trioweb.org/

The Transplant Recipients International Organization offers transplant and donation information and resources.

http://organdonor.gov/index.html

The U.S. Department of Health and Human Services' Donation Initiative provides information about organ donation.

https://unos.org/

UNOS is a private, nonprofit organization managing the nation's organ transplant system under contract with the federal government.

http://www.wilsonsdisease.org/

The Wilson Disease Association serves those with this genetic disorder, which affects the brain and liver.