Pediatric Neuro-Oncology Program Resources
Teach Your Child About Proton Therapy
Use this kid-friendly tour of our Proton Therapy Center to prepare your child for their first day of treatment.
For Parents and Caregivers
Facts About Childhood Cancer Infographic
This childhood cancer infographic was designed by the Cancer Center at CHOP to describe challenges facing pediatric cancer researchers, doctors and patients.
Childhood Brain & Spinal Cord Tumors: A Guide for Families
This guide includes descriptions of the newest brain and spinal cord tumor treatments, as well as practical advice about how to cope with the diagnosis.
Childhood Cancer: A Parent's Guide to Solid Tumor Cancers
This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.
Educational and Social Resources for Patients and Families
Adolescent and Young Adult FAQs [PDF]
If you are an adolescent or young adult (AYA) with cancer, you probably have many questions. We understand that not everyone wants to ask their questions out loud, so we’ve compiled a list of those that are often asked.
Fertility Options for Young Female Cancer Patients
The Children's Hospital of Philadelphia has one of the best fertility preservation programs in pediatric oncology, offering choices for teenagers and young women as well as girls who have not yet experienced puberty.
Fertility Preservation for Boys Treated for Cancer
While preserving fertility is an important topic for families to discuss before cancer treatment begins, it can also lead to some uncomfortable conversations.
Advanced Options for High-Risk Oncology Patients
This video series is designed to help referring oncologists and families better understand the different treatment options for patients with difficult or hard to treat cancers.
Art of Caregiving: Living a Life of Balance
Social workers discuss the complexities of caregiving, how to have caring, honest conversation with members of the family around the topic of caregiving, and offer tips on how to manage the unique role of the caregiver.
Dealing With the Challenges of Childhood Cancer and Treatment
Psychologist Meghan Marsac discusses coping strategies for families facing childhood cancer.
Outpatient Oncology Video Tour: Buerger Center
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Buerger Center for Advanced Pediatric Care on the Raymond G. Perelman Campus.
Outpatient Oncology Video Tour: King of Prussia
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the King of Prussia Specialty Care & Surgery Center.
Outpatient Oncology Video Tour: Voorhees
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Specialty Care & Surgery Center in Voorhees, NJ.
Pediatric Brain Tumor Research: Presentation by Experts from The Children's Hospital of Philadelphia
Pediatric brain tumor experts from the Children's Brain Tumor Tissue Consortium (CBTTC) at CHOP discussed the latest research in pediatric neuro-oncology in a webinar held May 15, 2015.
PTSD and Post-traumatic Growth After Childhood Cancer
Dr. Lamia Barakat discusses the ways childhood cancer affects the child, parents and siblings, focusing on the experience of post-traumatic stress symptoms and post-traumatic growth.
Taking On Challenges: Surgical Oncology Options for Solid Tumors
CHOP's pediatric surgical oncology team consists of experts with extensive experience in various types of cancers, including neuroblastoma, brain and bone tumors, as well as other rare and hard-to-treat cancers.
The Sibling Experience: Pediatric Families Coping With Childhood Cancer
Psychologist Lynne Kaplan, PhD, and child life specialist Sarah Pajak discuss the experience of siblings of a childhood cancer patient.
Thriving in School After Treatment
In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.
Video: Proton Therapy for Pediatric Brain Cancer
Proton therapy is an alternative to traditional radiation treatment for childhood brain tumors. Learn how it works.
Cancer Hope Network
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
Children's Tumor Foundation: Ending NF Through Research
The Children's Tumor Foundation is dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis.
Children’s Brain Tumor Foundation
Its mission is to improve the treatment, quality of life and the long-term outlook of children with brain tumors through research, support, education, and advocacy to families and survivors.
National Brain Tumor Society
The National Brain Tumor Society is committed to moving research toward new treatments, fighting for policies that improve lives, and providing information and resources.
National Cancer Institute
NCI's website includes links to information about treatment, clinical trials, testing and research.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and the development of local NF organizations.
The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.
OncoLink is a website maintained by the Abramson Cancer Center at the Hospital of the University of Pennsylvania. It features a wide variety of information on adult and pediatric cancers.
Pacific Pediatric Neuro-Oncology Consortium (PNOC)
PNOC is a network of eight children’s hospitals that conduct clinical trials of new therapies for children with brain tumors.
Pediatric Brain Tumor Foundation
The Pediatric Brain Tumor Foundation provides free educational information about brain tumors, college scholarships and Ride for Kids motorcycle charity events.