Pediatric Neuro-Oncology Program Resources

Reproductive Health


For Patients

If you are an adolescent or young adult (AYA) with cancer, you probably have many questions. We understand that not everyone wants to ask their questions out loud, so we’ve compiled a list of those that are often asked.


For Parents and Caregivers

Cancer Awareness Infographic Thumbnail

This childhood cancer infographic was designed by the Cancer Center at CHOP to describe challenges facing pediatric cancer researchers, doctors and patients.


Videos

mother reading to daughter

Social workers discuss the complexities of caregiving, how to have caring, honest conversation with members of the family around the topic of caregiving, and offer tips on how to manage the unique role of the caregiver.

The Children's Hospital of Philadelphia has one of the best fertility preservation programs in pediatric oncology, offering choices for teenagers and young women as well as girls who have not yet experienced puberty.

In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.


Websites

Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.

Its mission is to improve the treatment, quality of life and the long-term outlook of children with brain tumors through research, support, education, and advocacy to families and survivors.

The National Brain Tumor Society is committed to moving research toward new treatments, fighting for policies that improve lives, and providing information and resources.

NCI's website includes links to information about treatment, clinical trials, testing and research.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and the development of local NF organizations.

The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.

OncoLink is a website maintained by the Abramson Cancer Center at the Hospital of the University of Pennsylvania. It features a wide variety of information on adult and pediatric cancers.

The Pediatric Brain Tumor Foundation provides free educational information about brain tumors, college scholarships and Ride for Kids motorcycle charity events.


Books

This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.