Neurofibromatosis Program Patient Stories

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Hypothalamic/Optic Pathway Glioma NF1: Abby’s Story


When Abby was a toddler, she was diagnosed with a disorder that causes tumors and has been receiving treatments at CHOP. Abby is a Patient Ambassador for the 2016 Parkway Run & Walk. Read about her amazing efforts to help other kids undergoing chemotherapy.

Neurofibromatosis Type 1: Cullen’s Story

Cullen with his cat

Cullen Mitchell has neurofibromatosis, a genetic disorder. His parents, Kelly and Ken, credit the Neurofibromatosis Program at CHOP with helping them manage the complexities of caring for a child with this condition.