Neuroscience Center Resources
My Trip to the Hospital for a Video EEG
To help prepare your child for her video EEG, watch this kid-friendly slideshow, which offers a step-by-step description of what to expect during the test.
Pediatric Stroke Infographic
Pediatric stroke can happen in infants, children and even before birth. This infographic created by the American Stroke Association offers facts about perinatal and childhood stroke.
Headache Calendar (Detailed) [PDF]
Use this detailed headache calendar to document each time your child has a headache and bring the completed calendars to your child’s next appointment with the doctor.
Helping Teens with Epilepsy Transition to Adult Care
CHOP's Epilepsy Program is committed to helping teens prepare for and transition to an adult doctor.
Migraine Headache Calendar (Simple) [PDF]
Complete this easy-to-use migraine headache calendar to mark each day your child has a headache and bring it to your child’s next appointment with the doctor.
Diagnosing and Treating Acute Flaccid Myelitis Podcast
Listen to pediatric neurologist Sarah Hopkins, MD, MSPH, talk about the diagnosis and management of acute flaccid myelitis (AFM), including how to distinguish it from other similar neurologic diseases.
Diagnosis and Treatment of Spinal Muscular Atrophy (SMA) Podcast
Listen to pediatric neurologist Elizabeth Kichula, MD, PhD, discuss the pathophysiology and clinical presentation of spinal muscular atrophy (SMA), prenatal screening, diagnosis and treatment for this neurodegenerative disease.
Support and Education Groups
Neuro-Rehab Parent Support Group
The Neuro-Rehab Parent Support Group is open to parents and caregivers of children with acquired brain injury (including traumatic brain injury and stroke). The group meets the second Wednesday of every month from 7 to 8:30 p.m.
Teen Neuro-Rehab Support Group
The Teen Neuro-Rehab Support Group provides support to teens and young adults (ages 13-21) with acquired brain injuries (including traumatic brain injury and stroke). The group meets the second Wednesday of every month from 7 to 8:30 p.m.
Advancing Care for Children with White Matter Disease: Leukodystrophy Center
Watch the video to learn how Children’s Hospital of Philadelphia’s Leukodystrophy Center is using research to advance clinical care for white matter diseases.
Aicardi-Goutières Syndrome (AGS) Family Conference 2019
Meet families whose children have Aicardi-Goutières syndrome (AGS), and see highlights from the 2019 AGS Family Conference at CHOP.
Conjoined Twins Abby and Erin Delaney: A Year in the Life
In this video you’ll join the Delaney family on their journey, learn about the large team involved in the separation surgery, and see how Abby and Erin are doing today.
Fetal Surgery for Spina Bifida Video
This video about fetal surgery for spina bifida explains spina bifida treatment options, the benefits of spina bifida surgery before birth and more.
H-ABC Family Conference 2018
This video includes interviews with families of children diagnosed with TUBB4A-related leukodystrophies, including Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum (H-ABC), along with highlights from the 2018 H-ABC Family Conference.
Moyamoya Disease: A Coordinated Approach to Care
Children with moyamoya disease require coordinated care. Treatment includes indirect bypass surgery which helps reduce the risk of stroke, as well as medical and rehabilitation treatment by stroke specialists.
Pediatric Brain Tumor Research: Presentation by Experts from The Children's Hospital of Philadelphia
Pediatric brain tumor experts from the Children's Brain Tumor Tissue Consortium (CBTTC) at CHOP discussed the latest research in pediatric neuro-oncology in a webinar held May 15, 2015.
Pediatric Neurosurgery and Research
Families travel from around the world to be treated by the pediatric neurosurgery team at The Children's Hospital of Philadelphia. This video series explains several neurosurgery procedures performed by pediatric neurosurgeons at CHOP and current brain tumor research.
Pediatric Stroke Awareness Video: A Stroke Can Happen at Any Age
The International Alliance for Pediatric Stroke, in partnership with the American Heart Association/American Stroke Association created a video about pediatric stroke to help raise awareness that a stroke can happen to infants, children and even before birth. The video features Rebecca Ichord, MD, pediatric neurologist and director of the Pediatric Stroke Program at CHOP.
Spina Bifida Surgery Before Birth: Illustrated Video
A video with illustrations explains the intricate steps involved in performing spina bifida surgery before birth and the expert fetal surgery team involved.
Take It Seriously: Get Care Quickly for Concussion
CHOP concussion experts encourage families to seek medical attention for any type of head injury and follow doctors’ advice before resuming typical activities.
The Delaney Twins: Progress Report
An update on Abby and Erin Delaney, who were born conjoined and separated at Children's Hospital of Philadelphia (CHOP). Now now 2½ years old, they are making amazing strides in their growth and development.
Treating Seizures in Children: Pediatric Epilepsy Program Video
In this video, pediatric epilepsy specialists from CHOP's Pediatric Epilepsy Program talk about our approach to personalized treatment of children with seizures and epilepsy.
Video: Inpatient Rehabilitation at Children's Hospital of Philadelphia
Watch a video about inpatient rehabilitation services for children and adolescents at Children's Hospital of Philadelphia (CHOP).
American Headache Society
The American Headache Society® Committee for Headache Education is dedicated to advancing the treatment and management of patients with headaches. The website offers educational materials, tools and resources to support patients and their families.
American Migraine Foundation
The American Migraine Foundation provides information about migraine symptoms and triggers in children, how to help your child manage migraines, and strategies for coping with migraines at school and in other social situations.
American Stroke Association
The American Stroke Association is the division of the American Heart Association that's solely focused on reducing disability and death from stroke through research, education, fundraising and advocacy.
Brain Injury Alliance of New Jersey (BIANJ)
The Brain Injury Alliance of New Jersey (BIANJ) has a family helpline in addition to information on its website.
Brain Injury Association of America
The Brain Injury Association of America (BIAA) is the country’s oldest and largest nationwide brain injury advocacy organization.
Brain Injury Association of Pennsylvania (BIAPA)
BIAPA provides a listing of support groups for regions across the state, a resource line, and pre-enrollment assistance information.
Hemi-Kids: Online Support for Children with Hemiplegia or Hemiplegic Cerebral Palsy
Hemi-Kids is an online support group of over 900 families of children who have hemiplegia or hemiplegic cerebral palsy.
International Alliance for Pediatric Stroke (IAPS)
IAPS was established to facilitate collaboration among the many international pediatric stroke communities. The purpose is to provide a stronger, more united voice to effectively advocate for newborns, babies and children who have had a stroke.
National Headache Foundation
The National Headache Foundation offers comprehensive resources to help patients and families better understand headaches and migraines, as well as learn about advances in treatment.
National Institute of Neurological Disorders and Stroke (NINDS)
The mission of the National Institute of Neurological Disorders and Stroke (NINDS) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.
National Institute of Neurological Disorders and Stroke Friedreich's Ataxia Fact Sheet
NINDS offers information about Friedreich's Ataxia, including signs and symptoms, diagnosis, treatment and research.
National Multiple Sclerosis Society
The National MS Society provides information, resources, programs and services for individuals living with MS and other immune-mediated, demyelinating diseases of the central nervous system.
National Stroke Association
The National Stroke Association provides information and resources to the public and health professionals with the aim of reducing the incidence and impact of stroke.
New Jersey Traumatic Brain Injury (TBI) Fund
The Traumatic Brain Injury (TBI) Fund provides New Jersey residents of any age, who have survived a traumatic brain injury, the opportunity to access the brain injury related services and supports they need to live in the community.
PA Tourette Syndrome Alliance, Inc. (PATSA)
The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS.
Tourette Association of America (TAA)
The Tourette Association of America is a non-profit organization working to make life better for all people affected by Tourette and Tic disorders, offering resources and referrals to help individuals and families cope with the challenges related to these disorders.
Understanding Pediatric Migraine
Christina Szperka, MD, Director of CHOP's Pediatric Headache Program, outlines common symptoms and treatment options for pediatric migraine in an interview with the American Migraine Foundation.