Newborn/Infant Intensive Care Unit (N/IICU) Patients Stories Listing

Here in the N/IICU, every person on your baby's team has the same goal: to give your child the best possible care. We provide expert care and support your family in any way you need.

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Patient story

Asher’s Story: Fetoscopic Endoluminal Tracheal Occlusion for Congenital Diaphragmatic Hernia

Asher came to CHOP for a fetal surgery procedure called FETO to treat his severe CDH before he was born, giving him the best chance to survive and thrive.

Patient story

AJ’s Story: Fetal Surgery for Congenital Diaphragmatic Hernia

Fetal surgery for severe CDH gave AJ’s lungs a chance to grow before birth, improving his chances of a better outcome. Today, the 6-year-old is thriving.

Patient story

Chronic Lung Disease: Ethan’s Story

While doctors at CHOP helped Ethan’s premature lungs develop, other staff helped his family manage the stress of having a sick newborn.

Patient story

A Dream Fulfilled: From Surgery as a Newborn to a Nurse in the ICU

Abby underwent surgery to remove a lung lesion at CHOP in her first few days of life and is now, 26 years later, a nurse in the Hospital’s ICU.

Patient story

The Story of Addy and Lily: Birth and Separation of Conjoined Twins

It took an incredible team effort by experts at Children’s Hospital of Philadelphia to separate conjoined twins and get them home to Chicago for Christmas.

Patient story

Omphalocele Discovered During Pregnancy: Grace’s Story

At CHOP, when pediatric surgeons perform postnatal repair of omphalocele, a child’s health and quality of life are both top of mind.

Patient story

Heart Defect and Down Syndrome: Anthony’s Long Road Home

Born with a heart defect and Down syndrome, Anthony needed immediate treatment for his cardiac issue before his developmental condition could be addressed.

Patient story

Congenital Cystic Adenomatoid Malformation (CCAM) Surgery: Owen’s Story

The fetal medicine team at Children’s Hospital of Philadelphia made a treatment plan for his CCAM/CPAM, and Owen is now home and happy after surgery.

Patient story

Maxwell’s Story: Postnatal Repair and Care for Congenital Diaphragmatic Hernia

Chris and Jolin traveled from their home in Pensacola, Florida to Children’s Hospital of Philadelphia to give their son, Max, access to world-class CDH care.