Newborn/Infant Intensive Care Unit Patient Stories
1 - 10 of 36
Asher’s Story: Fetoscopic Endoluminal Tracheal Occlusion for Congenital Diaphragmatic Hernia
Asher came to CHOP for a fetal surgery procedure called FETO to treat his severe CDH before he was born, giving him the best chance to survive and thrive.
Chronic Lung Disease: Ethan’s Story
While doctors at CHOP helped Ethan’s premature lungs develop, other staff helped his family manage the stress of having a sick newborn.
A Dream Fulfilled: From Surgery as a Newborn to a Nurse in the ICU
Abby underwent surgery to remove a lung lesion at CHOP in her first few days of life and is now, 26 years later, a nurse in the Hospital’s ICU.
The Story of Addy and Lily: Birth and Separation of Conjoined Twins
It took an incredible team effort by experts at Children’s Hospital of Philadelphia to separate conjoined twins and get them home to Chicago for Christmas.
Omphalocele Discovered During Pregnancy: Grace’s Story
At CHOP, when pediatric surgeons perform postnatal repair of omphalocele, a child’s health and quality of life are both top of mind.
Heart Defect and Down Syndrome: Anthony’s Long Road Home
Born with a heart defect and Down syndrome, Anthony needed immediate treatment for his cardiac issue before his developmental condition could be addressed.
Congenital Cystic Adenomatoid Malformation (CCAM) Surgery: Owen’s Story
The fetal medicine team at Children’s Hospital of Philadelphia made a treatment plan for his CCAM/CPAM, and Owen is now home and happy after surgery.
Maxwell’s Story: Postnatal Repair and Care for Congenital Diaphragmatic Hernia
Chris and Jolin traveled from their home in Pensacola, Florida to Children’s Hospital of Philadelphia to give their son, Max, access to world-class CDH care.
Thomas’s Story: Prenatal Diagnosis and Postnatal Surgical Repair of Encephalocele
One family shares their experience for parents who learn their child has a severe diagnosis before birth
Liver Transplant: Josie’s Story
As a baby, Josie received a liver transplant. This began a 10-year journey that included bonding with her donor’s family and a generous gift to help future transplant patients.