Newborn/Infant Intensive Care Unit Patient Stories

11 - 20 of 23

Gastroschisis: Vincenzo’s Story

Vincenzo with his parents in the N/IICU

Diagnosed prenatally with the abdominal wall defect gastroschisis, Vincenzo’s family traveled to CHOP for delivery and expert surgical repair. See how he's doing 10 years later.

Giant Omphalocele: Charlotte's Story

Fetal Patient Charlotte Checkup

Diagnosed before birth with giant omphalocele, Charlotte came to CHOP for delivery, surgery and follow-up care by a team experienced in caring for this birth defect.

Giant Omphalocele: Jackson's Story

Jackson at the pool

Casey and Bryan Kirsch were determined to give their son Jackson every chance to live a healthy life when they learned that he had a giant omphalocele.

Hirschsprung's Disease: Khloe's Story

khloe

Khloe was just 2 days old when doctors noticed she was having digestive problems. She was transferred to CHOP where doctors discovered she had Hirschsprung’s disease.

Hirschsprung’s Disease: Luke's Story

Luke in a suit standing at home

Luke was diagnosed with Hirschsprung’s disease when he was just three 3 days old, and underwent surgery to remove the affected part of his colon at Children’s Hospital of Philadelphia.

Methylmalonic Acidemia: Gavin’s Story

After being rushed to CHOP with dangerously high level of ammonia, baby Gavin was diagnosed with methylmalonic acidemia, a rare, life-threatening metabolic condition.


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