Pediatric Epilepsy Program Resources

Family Connection Through Trust, Information, Empathy and Support (aka, Family TIES) is a program offered through the CHOP Neuroscience Center that connects families that have already experienced epilepsy surgery with current and prospective patients and their families.

Children’s Hospital of Philadelphia’s Ketogenic Diet Teaching Kitchen (Keto Kitchen) is a teaching kitchen where parents and caregivers can take cooking classes and learn to prepare the foods their child will need when following a dietary treatment for epilepsy and neurological disorders.

CHOP's Epilepsy Program is committed to helping teens prepare for and transition to an adult doctor.

https://www.youtube.com/watch?v=0nfSi4vTEIc

Earlier this year, the Pediatric Epilepsy program at Children’s Hospital of Philadelphia held a Virtual Epilepsy Education Day, a special event for parents and caregivers of children recently diagnosed with epilepsy.

In this video, pediatric epilepsy specialists from CHOP's Pediatric Epilepsy Program talk about our approach to personalized treatment of children with seizures and epilepsy.

http://www.efepa.org/programs-and-resources/camp-achieve/

Camp Achieve offers a program tailored to the special needs of youths with epilepsy. Learn more and find upcoming camp dates.

http://www.efwp.org/programs/ProgramsCampFrog.xml

Camp Frog is a nationally recognized program for children who have epilepsy or seizure disorder. Learn more and find upcoming camp dates.

https://www.familyresourcenetwork.org/campnova/

Camp Nova is a one-week overnight camp for young people ages 12-28. It includes acting, arts and crafts, boating, fishing, karate, swimming and yoga.

https://www.elc-pa.org/

CLE has worked to implement and enforce the rights of all students with disabilities to a full, meaningful and equal public education.

Early intervention (EI) is a group of services provided to children who may have developmental delays.

Early intervention (EI) is a group of services provided to children who may have developmental delays.

Early intervention (EI) is a group of services provided to children who may have developmental delays.

http://www.edlawcenter.org/

The Education Law Center of NJ advocates for children with learning disabilities to ensure that all children have access to a quality public education.

http://www.elc-pa.org/

The Education Law Center of PA advocates for children with learning disabilities to ensure that all children have access to a quality public education. To contact the local office by phone, call 215-238-6970.

http://www.efnj.com/

Is a non-profit charitable agency dedicated to helping improve the quality of life for people affected by epilepsy and their loved ones.

http://www.efepa.org/

The website provides information about epilepsy, news and special events, and programs and resources for patient and families.

http://www.efwp.org/

A private, non-profit service organization providing public education and supportive services to individuals and families affected by epilepsy/seizure disorders.

http://www.fscnj.org/

The Center offers comprehensive array of services for those seeking information on disabilities.

http://www.rarediseases.org/

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

http://www.spanadvocacy.org/index.php

The website offers families and professionals information, resources, support and advocacy assistance.

http://www.parenttoparent.org

This network empowers and supports parents across Pennsylvania by connecting them with families of children & adults with special needs or disabilities who’ve had similar journeys.

http://www.phlp.org/

PHLP is a nationally recognized expert and consultant on access to healthcare for low income consumers, the elderly and persons with disabilities.

https://www.health.pa.gov/topics/programs/special%20kids%20network/pages/special%20kids%20network.aspx

It provides information to families in PA regarding special health issues and community resources. It also links families facing similar experiences together.

http://www.epilepsy.com/driving-laws

Search the State Driving Laws Database from the Epilepsy Foundation to learn about your state's requirements for people with epilepsy.

http://thearcpa.org

The Arc of Pennsylvania is the largest advocacy organization in the United States for citizens with intellectual and developmental disabilities and their families. To contact the local office in Harrisburg call 717-234-2621; in Philadelphia call 215-229-4550, or visit the Arc's website to find a local chapter in your area.