Family Connection Through Trust, Information, Empathy and Support (aka, Family TIES) is a program offered through the CHOP Neuroscience Center that connects families that have already experienced epilepsy surgery with current and prospective patients and their families.
Children’s Hospital of Philadelphia’s Ketogenic Diet Teaching Kitchen (Keto Kitchen) is a teaching kitchen where parents and caregivers can take cooking classes and learn to prepare the foods their child will need when following a dietary treatment for epilepsy and neurological disorders.
In this video, pediatric epilepsy specialists from CHOP's Pediatric Epilepsy Program talk about our approach to personalized treatment of children with seizures and epilepsy.
The Education Law Center of NJ advocates for children with learning disabilities to ensure that all children have access to a quality public education.
The Education Law Center of PA advocates for children with learning disabilities to ensure that all children have access to a quality public education. To contact the local office by phone, call 215-238-6970.
A private, non-profit service organization providing public education and supportive services to individuals and families affected by epilepsy/seizure disorders.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
This network empowers and supports parents across Pennsylvania by connecting them with families of children & adults with special needs or disabilities who’ve had similar journeys.
It provides information to families in PA regarding special health issues and community resources. It also links families facing similar experiences together.
The Arc of Pennsylvania is the largest advocacy organization in the United States for citizens with intellectual and developmental disabilities and their families. To contact the local office in Harrisburg call 717-234-2621; in Philadelphia call 215-229-4550, or visit the Arc's website to find a local chapter in your area.