Pediatric Lung Transplant Program Resources

The Transplant Center has a dedicated financial counselor who will work with you and your insurance company to obtain detailed insurance benefits for all aspects of the transplant process.

https://www.donors1.org/patients/resources-for-transplant-patients/scholarships-and-camps/camp-jeremy/

Blue Bell, PA: Camp Jeremy is a week-long day camp for children ages 6 to 16 years who have undergone a life-saving organ transplant, and their siblings.

Download this guide to learn about important topics including the transplant evaluation process, waiting for a transplant, transplant surgery, post-transplant care, and life after transplant.

https://www.lung.org

The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy and research. 

https://www.lung.org

The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy and research. 

http://www.aotaonline.org

The American Organ Transplant Association helps to make organ transplant surgery, travel and aftercare available to patients and their families.

https://www.myast.org

AST is an organization of transplant professionals dedicated to research, education, advocacy and patient care in transplantation science and medicine.

http://www.thoracic.org/patients/

ATS is the world's leading medical association dedicated to advancing the clinical and scientific understanding of pulmonary diseases, critical illnesses and sleep-related breathing disorders.

http://www.cota.org/

COTA exists to assist patients who require a life-saving transplant by providing fundraising assistance and family support.

http://www.shareyourlife.org/

This a not-for-profit alliance of national organizations and state teams across the U.S. committed to increasing organ, eye and tissue donation.

http://www.donors1.org/

Gift of Life is the organ and tissue procurement organization (OPO) serving eastern Pennsylvania, southern New Jersey and Delaware.

http://www.giftoflifefamilyhouse.org/

The Gift of Life Family House provides critically needed support programs and temporary lodging for organ transplant patients and their families.

http://ishlt.org

ISHLT is a multidisciplinary, professional organization dedicated to improving the care of patients with advanced heart or lung disease.

http://www.medactionplan.com

MedActionPlan.com is a family of powerful, web-based programs that allow healthcare providers to create, print, and document personalized treatment plans for patients. 

http://www.transplants.org/

The National Foundation for Transplants provides fundraising assistance to patients for the portion of transplant costs not covered by insurance.

http://www.nhlbi.nih.gov

NHLBI provides health information to the public and healthcare professionals to promote the prevention and treatment of heart, lung, and blood diseases.

http://www.trioweb.org/about.html

TRIO is committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.

http://www.trioweb.org/

The Transplant Recipients International Organization offers transplant and donation information and resources.

http://organdonor.gov/index.html

The U.S. Department of Health and Human Services' Donation Initiative provides information about organ donation.

https://unos.org/

UNOS is a private, nonprofit organization managing the nation's organ transplant system under contract with the federal government.