Pediatric Transplant Center Resources

The Transplant Center has a dedicated financial counselor who will work with you and your insurance company to obtain detailed insurance benefits for all aspects of the transplant process.

Watch a video that introduces the Liver Transplant Program at Children’s Hospital of Philadelphia, which does around 20 pediatric liver transplants a year for children suffering from a host of conditions, including biliary atresia.

https://www.donors1.org/patients/resources-for-transplant-patients/scholarships-and-camps/camp-jeremy/

Blue Bell, PA: Camp Jeremy is a week-long day camp for children ages 6 to 16 years who have undergone a life-saving organ transplant, and their siblings.

http://frostvalley.org/camp/specialty-camps/kidney-camp/

Claryville, NY: Frost Valley is held during two, two-week sessions beginning June 28 and July 12. Children ages 7 to 15 years (or up to 10th grade) who are on dialysis, who are post-transplant, or who have chronic kidney disease are eligible to attend.

http://www.chp.edu/CHP/pediatric+nephrology+kidney+camp

Ligonier, PA: Kidney Kamp is held in the first week of August for children of all ages with peritoneal dialysis, who are pre-dialysis or on hemodialysis, or who have had a transplant.

The Pediatric Transplant Center at Children's Hospital of Philadelphia's (CHOP) held a free webinar series for adolescent organ transplant recipients and their families.

http://www.aotaonline.org

The American Organ Transplant Association helps to make organ transplant surgery, travel and aftercare available to patients and their families.

https://www.myast.org

AST is an organization of transplant professionals dedicated to research, education, advocacy and patient care in transplantation science and medicine.

http://www.cota.org/

COTA exists to assist patients who require a life-saving transplant by providing fundraising assistance and family support.

http://www.shareyourlife.org/

This a not-for-profit alliance of national organizations and state teams across the U.S. committed to increasing organ, eye and tissue donation.

http://www.donors1.org/

Gift of Life is the organ and tissue procurement organization (OPO) serving eastern Pennsylvania, southern New Jersey and Delaware.

http://www.giftoflifefamilyhouse.org/

The Gift of Life Family House provides critically needed support programs and temporary lodging for organ transplant patients and their families.

http://iptaonline.org/

The International Pediatric Transplant Association (IPTA) is a professional organization of individuals in the field of pediatric transplantation. The purpose of the Association is to advance the science and practice of pediatric transplantation worldwide in order to improve the health of all children who require such treatment. 

http://www.transplants.org/

The National Foundation for Transplants provides fundraising assistance to patients for the portion of transplant costs not covered by insurance.

http://www.srtr.org/default.aspx

The Scientific Registry of Transplant Recipients (SRTR) is an ever-expanding national database of transplant statistics. The registry exists to support ongoing evaluation of the scientific and clinical status of solid organ transplantation, including kidney, heart, liver, lung, intestine, and pancreas. 

http://www.trioweb.org/about.html

TRIO is committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.

http://www.trioweb.org/

The Transplant Recipients International Organization offers transplant and donation information and resources.

http://organdonor.gov/index.html

The U.S. Department of Health and Human Services' Donation Initiative provides information about organ donation.

https://unos.org/

UNOS is a private, nonprofit organization managing the nation's organ transplant system under contract with the federal government.