Rare Lung Diseases Center Resources

https://www.atcp.org/

The A-T Children’s Project is a 501c3 nonprofit organization that raises funds to support and coordinate biomedical research projects, scientific conferences and a clinical center aimed at finding life-improving therapies and a cure for ataxia-telangiectasia (A-T).

https://www.aaaai.org

AAAI is an international society for patients and healthcare professionals that provides expert resources including condition content, advocacy tools and more.

https://www.aap.org

The AAP is committed to the optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.

https://acaai.org/allergies

The American College of Allergy, Asthma & Immunology provides information and resources about allergies and asthma for patients and families.

https://www.lung.org

The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy and research. 

http://www.thoracic.org/patients/

ATS is the world's leading medical association dedicated to advancing the clinical and scientific understanding of pulmonary diseases, critical illnesses and sleep-related breathing disorders.

http://www.cdc.gov/

The CDC is dedicated to protecting health and promoting quality of life through the prevention and control of disease, injury and disability.

http://www.child-foundation.com/

ChILD Foundation provides compassionate support, education and hope to children and families affected with children’s interstitial and diffuse lung disease.

https://www.hpsnetwork.org/

The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders.

https://www.nehiresearch.org/

The NEHI Research Foundation aims to improve the lives of patients and their families. As a foundation, they support scientific research aimed at improving the diagnostic process, treatments, and ultimately finding a cure.