Rare Lung Diseases Center Resources
Learn how to care for your child's tracheostomy in our book Breathe Easy.
The A-T Children’s Project is a 501c3 nonprofit organization that raises funds to support and coordinate biomedical research projects, scientific conferences and a clinical center aimed at finding life-improving therapies and a cure for ataxia-telangiectasia (A-T).
AAAI is an international society for patients and healthcare professionals that provides expert resources including condition content, advocacy tools and more.
The AAP is committed to the optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
The American College of Allergy, Asthma & Immunology provides information and resources about allergies and asthma for patients and families.
The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy and research.
ATS is the world's leading medical association dedicated to advancing the clinical and scientific understanding of pulmonary diseases, critical illnesses and sleep-related breathing disorders.
The CDC is dedicated to protecting health and promoting quality of life through the prevention and control of disease, injury and disability.
ChILD Foundation provides compassionate support, education and hope to children and families affected with children’s interstitial and diffuse lung disease.
The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders.
The NEHI Research Foundation aims to improve the lives of patients and their families. As a foundation, they support scientific research aimed at improving the diagnostic process, treatments, and ultimately finding a cure.