Refractory Neuroblastoma Program Resources
For Parents and Caregivers
Patient-family education materials provide educational information to help individuals and families facing childhood cancer.
This information will help patients and caregivers understand what to expect during MIBG, and how to prepare for this unique treatment.
Psychologist Meghan Marsac discusses coping strategies for families facing childhood cancer.
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Buerger Center for Advanced Pediatric Care on the Raymond G. Perelman Campus.
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the King of Prussia Specialty Care & Surgery Center.
Children's Hospital of Philadelphia (CHOP) patients and staff show you around the oncology space at the Specialty Care & Surgery Center in Voorhees, NJ.
Dr. Lamia Barakat discusses the ways childhood cancer affects the child, parents and siblings, focusing on the experience of post-traumatic stress symptoms and post-traumatic growth.
Psychologist Lynne Kaplan, PhD, and child life specialist Sarah Pajak discuss the experience of siblings of a childhood cancer patient.
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
The Children’s Neuroblastoma Cancer Foundation (CNCF) is the premier source for neuroblastoma information and resources.
NCI's website includes links to information about treatment, clinical trials, testing and research.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
OncoLink is a website maintained by the Abramson Cancer Center at the Hospital of the University of Pennsylvania. It features a wide variety of information on adult and pediatric cancers.
This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.