Rett Syndrome Clinic Resources
Educational Materials for Families
Girl Power 2 Cure
Girl Power 2 Cure is a non-profit organization supporting families dealing with Rett Syndrome; a severe neurological disorder that affects children.
International Rett Syndrome Foundation
The International Rett Syndrome Foundation (IRSF) is laser-focused on creating a world without Rett syndrome. For nearly 40 years, we have fueled life-changing advancements in research toward a cure.
NINDS Rett Syndrome Information
The mission is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease for all people.
Rett Syndrome Research Trust
Rett Syndrome Research Trust was launched in 2008 to drive research toward a cure for Rett Syndrome and related MECP2 disorders.
Rett University is an e-learning platform designed for parents, educators and therapists of Rett Syndrome and other Complex Needs students.
Resources for Professionals
Consensus guidelines on managing Rett syndrome across the lifespan [PDF]
This resource provides guidance and best practices on managing Rett syndrome across the lifespan.
Rett Syndrome Primary Care Guidelines [PDF]
The Rett Syndrome Primary Care Guidelines provide suggested visit schedules by clinical area of assessment, specific concerns to look for and timelines for follow up appointments. Download today to ensure the best care for your child.