Rett Syndrome Clinic Resources

http://girlpower2cure.org

Girl Power 2 Cure is a non-profit organization supporting families dealing with Rett Syndrome; a severe neurological disorder that affects children.

https://www.rettsyndrome.org/

The International Rett Syndrome Foundation (IRSF) is laser-focused on creating a world without Rett syndrome. For nearly 40 years, we have fueled life-changing advancements in research toward a cure.

http://ninds.nih.gov/Disorders/All-Disorders/Rett-Syndrome-Information-Page

The mission is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease for all people.

http://reverserett.org

Rett Syndrome Research Trust was launched in 2008 to drive research toward a cure for Rett Syndrome and related MECP2 disorders.

http://rettuniversity.org

Rett University is an e-learning platform designed for parents, educators and therapists of Rett Syndrome and other Complex Needs students.

This resource provides guidance and best practices on managing Rett syndrome across the lifespan. 

The Rett Syndrome Primary Care Guidelines provide suggested visit schedules by clinical area of assessment, specific concerns to look for and timelines for follow up appointments. Download today to ensure the best care for your child.