Sickle Cell and Red Cell Disorders Curative Therapy Center (CuRED) Resources

Caring for a child with any illness or injury can be overwhelming. To help you find answers to your questions and feel confident with the care you’re providing your child, we’ve created the following list of health resources. We hope they can help make this time in your family’s life a bit easier.

Educational Materials for Practitioners

In this lecture, we provide an overview for general practitioners and hematologists in which we review limitations of current therapies for sickle cell disease, pivotal data leading to the emergence of novel therapies, and approaches to deciding which therapies are optimal for individual patients.


For Caregivers

Be The Match® provides patients and families with educational resources and support.

The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant.

In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.

Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant.

Their mentors who are caregivers for pediatric patients are limited.

To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.

This video will help you learn what gene therapy is and how it works.

Information on the transplant process at CHOP.

This educational video produced by Be The Match® explains the basics of a blood or marrow transplant.


For Children and Siblings

KidsHealth.org offers information for kids and teens on a variety of health topics in an easy to understand way.