Sickle Cell and Red Cell Disorders Curative Therapy Center (CuRED) Resources
Educational Materials for Practitioners
Curative and Emerging Therapies for Sickle Cell Disease
In this lecture, we provide an overview for general practitioners and hematologists in which we review limitations of current therapies for sickle cell disease, pivotal data leading to the emergence of novel therapies, and approaches to deciding which therapies are optimal for individual patients.
Be The Match
Be The Match® provides patients and families with educational resources and support.
Be the Match Peer Connect Program
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant.
In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
BMT Infonet Caring Connections Program
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant.
Their mentors who are caregivers for pediatric patients are limited.
To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
Chapter 1: What are genes?
This video will help you learn what gene therapy is and how it works.
Getting Ready for Your Child's Marrow or Cord Blood Transplant
This video will help you learn more about the transplant process here at CHOP.
Sickle Cell Transplant Advocacy & Research Alliance
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
Transplant Process at CHOP
Information on the transplant process at CHOP.
What Is a Blood or Marrow Transplant?
This educational video produced by Be The Match® explains the basics of a blood or marrow transplant.
For Children and Siblings
Be The Match: Support for Siblings
Be the Match has a special support section for sibling support.
KidsHealth.org offers information for kids and teens on a variety of health topics in an easy to understand way.
Super Sam vs the Marrow Monsters: Guide to BMT for Children Part 1
This two-part animated film features Sam, a young boy making an epic movie production about his own transplant experience.