Transition Readiness and Awareness for Cardiac Kids (TRACK) Program Resources

Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.

https://www.achaheart.org/media/3658/achafactsheetenglish.pdf

Check out this fact sheet about congenital heart disease (CHD), a problem with the heart’s structure that is present at birth.

https://www.achaheart.org/media/3659/achafactsheetspanish.pdf

Check out this fact sheet about congenital heart disease (CHD), a problem with the heart’s structure that is present at birth.

https://www.achaheart.org/media/3217/advancecare.pdf

When it comes to end-of-life decisions, planning and communication can make a big difference. See this Q&A from the Adult Congenital Heart Association.

https://www.achaheart.org/media/3450/qandabirthcontrol2022.pdf

The risk of pregnancy for women with CHD ranges widely. See this Q&A from the Adult Congenital Heart Association.

https://www.achaheart.org/media/3220/birth-control-qa-spanish.pdf

The risk of pregnancy for women with CHD ranges widely. See this Q&A from the Adult Congenital Heart Association.

https://www.achaheart.org/media/3203/exercise.pdf

See this Q&A about exercise and ACHD from the Adult Congenital Heart Association.

https://www.achaheart.org/media/3309/exercise_spanish.pdf

See this Q&A about exercise and ACHD from the Adult Congenital Heart Association.

https://www.achaheart.org/media/3076/achaguidelinesenglish.pdf

The American College of Cardiology and the American Heart Association made rules (guidelines) for taking care of adult patients with congenital heart defects (CHD). These guidelines give doctors the most important information for caring for adults with congenital heart disease (CHD).

https://www.achaheart.org/media/3077/achaguidelinesspanish.pdf

The American College of Cardiology and the American Heart Association made rules (guidelines) for taking care of adult patients with congenital heart defects (CHD). These guidelines give doctors the most important information for caring for adults with congenital heart disease (CHD).

https://www.achaheart.org/media/3205/insurance.pdf

Adults with congenital heart disease (CHD) should choose an insurance plan that will provide the coverage that they need for their special care. See this Q&A from the Adult Congenital Heart Association.

https://www.achaheart.org/media/3448/qapregnancy.pdf

Most women with congenital heart disease (CHD) can have a successful pregnancy. Doing so requires careful planning and management. See this Q&A from the Adult Congenital Heart Association.

https://www.achaheart.org/media/3627/preparingforcollegewithachd.pdf

Going to college is an exciting time filled with new friends and experiences. See this guide from the Adult Congenital Heart Association.

https://www.achaheart.org/media/3080/traveldirectory13thedition.pdf

This publication from the Adult Congenital Heart Association is intended to help you find emergency congenital heart care when traveling. It lists the clinic name, city, state and phone number, as well as email addresses, if available, of all the United States ACHD programs that confirmed contact information as of May 2021. It also lists contact information for international (including Canadian) ACHD programs.

https://chi.eurekaplatform.org/

While nearly 2 million adults in the United States are living with a congenital heart defect, it’s been historically hard to gather significant data on these conditions. That’s why the Heart Research Alliance, Adult Congenital Heart Association, University of California San Francisco and Children’s National Medical Center came together to develop the Congenital Heart Initiative, a patient registry for those with adult congenital heart disease (ACHD).