Turner Syndrome Program Resources
Patient Family Education
A Family’s Guide to Starting Daily Growth Hormone for Endocrinology Patients
This resource from Children’s Hospital of Philadelphia provides important information for patients prescribed growth hormone.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Turner Syndrome Society
Turner Syndrome Society is a national organization that provides information and support for families with children affected by Turner syndrome.