Very Rare Malignant Tumors Program Patient Stories

After being diagnosed with a rare type of tumor in her airway, Peyton came to CHOP for surgery that successfully saved part of her right lung.

Many oncology programs declared Callan’s rare tumor, located in his chest, inoperable. CHOP offered a comprehensive treatment plan that successfully removed the tumor.

Levy traveled from Brazil and participated in a clinical trial for an oral drug that targeted a specific genetic change in his tumor.

When she was 12, Maddie was very active — in particular, she practiced gymnastics several hours a day. But stomach pains and weight loss signaled the start of a challenging medical journey for her and her family. 

Vaida’s tumor is in her cheek, a rare location for a desmoid tumor. After surgery at CHOP, this 2-year-old has retained an impressive amount of facial muscle function.

After Rowan was diagnosed with thyroid cancer, she was treated with precision medicine at CHOP by experts in pediatric thyroid issues and rare pediatric cancers.