Very Rare Malignant Tumors Program Patient Stories

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Pancreatic Acinar Cell Carcinoma: Maddie’s Story

Maddie smiling outside

When she was 12, Maddie was very active — in particular, she practiced gymnastics several hours a day. But stomach pains and weight loss signaled the start of a challenging medical journey for her and her family. 

Desmoid Tumor: Vaida’s Story

Vaida sitting in the grass

Vaida’s tumor is in her cheek, a rare location for a desmoid tumor. After surgery at CHOP, this 2-year-old has retained an impressive amount of facial muscle function.