Very Rare Malignant Tumors Program Patients Stories Listing

Your child will be cared for by world leaders in rare childhood cancers. We provide medical care, emotional counseling and much more. We make sure your child and every member of your family get the highest level of support.

Existing patients or family members
New patients, referrals and second opinions
Patient story

Neuroendocrine Tumor: Peyton’s Story
After being diagnosed with a rare type of tumor in her airway, Peyton came to CHOP for surgery that successfully saved part of her right lung.
Patient story

Synovial Sarcoma: Callan’s Story
Many oncology programs declared Callan’s rare tumor, located in his chest, inoperable. CHOP offered a comprehensive treatment plan that successfully removed the tumor.
Patient story

Pancreatic Acinar Cell Carcinoma: Maddie’s Story
When she was 12, Maddie was very active — in particular, she practiced gymnastics several hours a day. But stomach pains and weight loss signaled the start of a challenging medical journey for her and her family. 
Patient story

Desmoid Tumor: Vaida’s Story
Vaida’s tumor is in her cheek, a rare location for a desmoid tumor. After surgery at CHOP, this 2-year-old has retained an impressive amount of facial muscle function.