Very Rare Malignant Tumors Program
If your child has a very rare type of cancer, you will find unparalleled expertise at our Very Rare Malignant Tumors Program.
Our team takes a highly individualized approach to your child's care. We use cancer genomics to identify mutations that can be treated with molecularly targeted therapies. Our patients have access to clinical trials that test new therapies. If your child has a cancer that more commonly occurs in adults, we bring together the experts in treating adult patients at Penn's Abramson Cancer Center.
We know that families with children who have very rare tumors can feel alone and at a loss for where to turn. We will help you cope and will be by your side every step of the way.
How we serve you
To give your child the very best care, our doctors, nurses and other experts are grouped into specially trained treatment teams. These teams provide your child with personalized care while building strong relationships to support your family.
Conditions we treat
The types of very rare tumors that we treat include rare subtypes of sarcomas, cancers usually found in adults, neuroendocrine tumors and pigmented lesions. Learn more about these conditions >
- Rare subtypes of sarcomas
- Cancers usually found in adults
- Neuroendocrine tumors
- Pigmented lesions
Why choose us
CHOP's Very Rare Malignant Tumors Program is a part of the Cancer Center, which consistently ranks as one of the top pediatric oncology programs in the nation. Our program is led by a national leader in pediatric oncology research and treatment, who also leads CHOP’s Developmental Therapeutics Program. This dual role is key, since developmental therapeutics focuses on making cancer drug therapies safer and more effective.
Meet your team
Your child will be cared for by world leaders in rare childhood cancers. We provide medical care, emotional counseling and much more. We make sure your child and every member of your family get the highest level of support.
Our research
It has been historically difficult to understand the best way to treat very rare malignant tumors in children because there have not been large clinical trials of different treatment options. Our program is determined to change that. Our team conducts early-phase clinical trials of new treatments for children with rare and difficult-to-treat cancers.
Patient stories
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